January 2020 – Standing up to Parkinson's

Another stone to turn over

When I run across something I haven’t heard about before I just have to follow the threads. The discussion was on how much carb/Levo a variety of pwp took, timing and side effects they had experienced.

Deb posted: ” I mostly only take c/l when I leave the house to exercise, run errands or socialize. At home without c/l I am a bit stiff and slower moving but still functional. If I take c/l for several days I get dystonia. I also take high dose thiamine which has made a huge difference in reducing almost all of my symptoms. https://stopparkinson.org/en/table-of-content/

When I clicked on the link… stopparkinson…Right up front I saw: Articles should not be downloaded and used for any purpose without the written agreement of the editor.

So, I just want to recommend you click on the link! Thiamine is in the B complex we take… but that provides only 25 mg once a day! That is a far cry from what they propose! I messaged to Deb, to ask her about her daily consumption.

Deb responded, “I use 500 mg -vitamin-b-1 . I take 2 at breakfast and 2 at lunch (2000 mg total). I was really struggling with balance and tremors but high dose thiamine gave me my life back.”

We exchanged emails… she typed, in part… “I hope the b1 helps you. It doesn’t work for everyone, but for me, it was life changing. I was diagnosed 4 yrs ago at 58. ….. A year ago I could not walk without a walker and just taking a shower would wipe me out for the day. I could barely move my body and needed help dressing. At my last appointment with my neurologist in Dec 2018, I was in a wheelchair and could barely stand up. They told me my only option was DBS surgery.”

“Just about 1 year ago, I stumbled on the information about high dose thiamine. Within 3 days of starting, my balanced returned and I no longer needed the walker. Within 3 weeks I was driving and going to yoga classes. It was quite an amazing change!”

“I have spent the whole year regaining my health and strength. I exercise every single day …… Some days I almost feel normal:-)”

SO… b1 is water soluble, so it doesn’t build up in the body or become toxic. A person can’t over dose on it. It is a vitamin, so it isn’t net work marketed. At .10 cents per capsule, I figure ‘nothing ventured, nothing gained.‘

I will keep y’all informed.. when the capsules arrive, the protocol I follow and ANY RESULTS… positive or negative.

Vanity comes in Queen size

As my hands have stiffened, I have needed to adapt: Because my legs are white & streaked with bulging varicose veins, I’d always wore Suntan support hose or long pants. When I could no longer get the nylons on, I wore long skirts with elastic waists, like my slacks. But I was having a difficult time parting with my favorite knee length skirts. I finally realized; if I purchased the support nylons in queen size… I can get them over my heels and on!

My biggest battle with my body and mind as I progress with Parkinson’s disease is prioritizing:

Contending with what I should do and what I don’t want to do. (like exercise)
Weeding out projects that I really want to do but know I shouldn’t do. (like weeding the flower beds)
Identifying what I can let go of. (I know!! I am a pack rat!) (& what if I experience a miracle! 🙂

Image may contain: 1 person, smiling, possible text that says 'Be in love with the person in the mirror. You have been through so much. Be proud.'

I know I posted the following picture before… But I love its message & it seemed to belong in this post about being a Queen.

Just say’n … falling with grace

Carol Moczygemba began a blog in 2016. She only made four posts in her blog… This is the one which got my attention: “My mobility is further constricted by a broken collarbone, owing to a fall last week. For a split second I got distracted from where I was placing my feet, and tripped. I’ve fallen before, every time thankful for no concussion, no broken bones. But this time I wasn’t so lucky.”

Karl Robb in a blog post this week speaks of ‘urgency for communication for a series of obvious reasons when it comes to an unpredictable neurological disorder such as Parkinson’s disease.’

On January 8th I wrote, in response to an inquiry: “Hi neighbor! I had my second fall, exactly 6 weeks after the first. This time I was in the kitchen, stepped back taking something out of the microwave, lost my balance,fell against the island on wheels, which rolled allowing my downward spiral. My bruised hip is still a little sore, but no permanent damage.”

As I notice a failure to continue to communicate, from other pwP, I wanted to assure you, my readers… Although I hold out hope for stem cell regeneration, (I began taking Stem Enhance Jan.22, 2020) I’ll make sure a loved one knows how to make an entry in my blog, so in the event I develop a problem, they will keep transparency going.

On my way…

I finally received my first bottle of Stem Enhance Ultra on Jan 21st, 2020. Additionally, we received another product from Cerule.com called Plasmaflo. Because I GENERALLY attack things rather aggressively, I would probably take twice the recommended amount, if it was cheaper. Still averaging $ .83/per capsule, it is way cheaper than the stem cell therapies offered through medical providers.

I have decided to take 3 Stem Enhance and 1 Plasmaflo spread out through each day. Slow and steady… like the tortoise… I hope for victory.

I hope the prescribed CARB/LEVO I take to temporarily boost the levels of dopa in my brain, act as a conductor to guide the stem cells to where the dopa would be produced in a healthy brain. I hope for synergy: the interaction or cooperation of two or more substances to produce a combined effect greater than the sum of their separate effects.

Growing small… a better understanding

I wanted to share this lady’s message. I transcribed one of her pieces from Robin Morgan’s TED talk in 2015. As Karl Robb posted in his blog “A Soft Voice in a Noisy World”…Her gentle cadence and masterful verbiage put her finger on many of the concerns, frustrations, and unknowns in dealing with a most mysterious illness.

. No Signs of Struggle

Growing small requires enormity of will: Just siting still in the doctor’s waiting room watching the future shuffle in and out, watching it stoop; stare at you, while you try not to look. Rare is an exchange: a smile of brief, wry recognition. You are the new kid on the block. Everyone here was you once. You are still learning that growing small requires a largeness of spirit you can’t fit into yet:

Acceptance of irritating help from those who love you; giving way and over, but not up. You’ve swallowed hard, the contents of the “drink me” bottle and felt yourself shrink. Now, familiar furniture looms, floors tilt, and door knobs yield only when wrestled round with both hands. It demands colossal patience, all this growing small:

Your diminished sleep at night, your handwriting, your voice, your height. You are more the incredible shrinking woman than the Buddhist mystic, serene, making do with less. Less is not always more. Yet in this emptying space, space glimmers, becoming visible. Here is a place behind the eyes that some would call diminishment.

It is a place of merciless poetry, a gift of presence previously ignored, drowned in the daily clutter. Here every gesture needs intention, is alive with consciousness. Nothing is automatic.

You can spot it in the provocation of a button, an arm poking at a sleeve, a balancing act at a night-time curb while negotiating the dark. Feats of such modest valor, who would suspect them to be exercises in an intimate, fierce discipline, a metaphysics of being relentlessly aware?

Such understated power here, in these tottering dancers who exert stupendous effort on tasks most view as insignificant. Such quiet beauty here, in these, my soft voiced, stiff-limbed people; such resolve masked by each placid face. There is immensity required in growing small, so bent on such unbending grace.

Faith and works go hand in hand

A brother at the temple asked my husband about the name of the product I had referenced in my blog, that I credited with contributing to my husband’s recovery from a debilitating condition. As my sweetheart related their conversation to me, it seems he didn’t give a direct answer.

As I pondered his response I believe the answer can be found in his profound deep faith. As he endured the years of crisis and pain, he was promised in priesthood blessings that he would, in time, be well again . And he has recovered.

Despite our trust in the Lord’s ability to heal, we also believe the Lord has given us the council to use wisdom in all things. He expects us to strive to learn through our own study and take advantage of the things made available to us in our quest for health. I believe our Heavenly Father has provided many things in nature that will bring our bodies into balance. He also provided man with the gifts of intelligence, curiosity and perseverance enabling us to seek to discover and apply. I see it as part of our test… faith without works isn’t always enough.

Do I think Stem Enhance was the only thing we tried that he benefited from? No. I suspect some of the cleanses helped remove toxic chemicals from his body. But I could see a direct correlation between the time of product usage and the reduction and elimination if his debilitating headaches.

Likewise, as I begin to take the product, I will continue to use other protocols that I feel may be beneficial to my holding symptoms at bay. And I will not leave the power of priesthood blessings out of the equation.

Release of stem cells

I changed a page on the top of my blog to “What Worked” relating to a success story in my husband’s health challenge of years gone by. Feel free to read it. As he is experiencing a new challenge, I was pondering how the stem cells are in the bone marrow, I inquired about the possibility of trying the product again, to reverse his newly diagnosed condition.

THE RESPONSE I GOT TO MY INQUIRY WAS:

“Please keep in mind. Everything in our bodies, from a single nerve cell to the tiniest tissue in an organ is a byproduct of stem cells. There is nothing that a stem cell cannot reproduce.”

“And keep in mind – our product is not only for people suffering from various conditions. It is also for people who want more vitality, more resilience, more enjoyment in life. Their bodies may not have manifested a disease or disorder, but they may be stiff, their bodies may hurt, but they just write it up to “aging.” The appearance of aging can be altered. You can add years to your life and gain wisdom, but you don’t have to have aging symptoms!!”

The person also attached a testimonial booklet. I found it encouraging, but no more encouraging than our own personal family experiences. Besides my husband’s previous successful outcome, his oldest brother had seen the change in my husband and inquired, “What did he do?“

We explained to him, how it had been explained to us, that the product encouraged a persons own body to release their own stem-cells which would go to the place in the persons own body where they were most needed. As his brother’s heart condition worsened, and medical specialist told him it was time to call his family together, his brother acquired his first bottle of the supplement. His brother said later, “I don’t ‘know’ that it is what made the difference, but I don’t dare not take it.” That brother is now 82 years young.

So now, I bet you are wondering… “If they got such great results… WHY haven’t I tried it, to see if I can document some improvements in my Parkinson’s symptoms?”

The truth? I do not know! But I plan to begin taking the product in January 2020.

I enrolled and placed my first order yesterday. If any person following my blog wold like to learn more about Stem Enhance, I am including a link to their site: https://JSR.cerule.com

I know I didn’t get ill over night, so I don’t expect immediate improvement, but I will report any lessening of symptoms as they come. Thinking positive thoughts.