EGD

Tomorrow morning I am supposed to report to the gastroenterology specialist at a surgical center for them to do an EGD (also known as esophago-gastro-duodenoscopy). So nothing to eat or drink after midnight.

I worried about doing anything medical until after the virus scare is gone. But the Dr. says the procedure is deemed needful and is approved. I wrote about my esophageal spasms in my post on March 17th. My father and twin sister have both had the procedure… apparently they will put a balloon down my throat and inflate it, to stretch where the constriction is. I will be asleep through the process. I don’t know why it makes me so nervous.

Ten days

I realized today, it has been ten days since I reported in!

I have continued to do very well, with the combination of B1 [650 mg] and Amantadine capsules. I don’t find myself running down and feeling in need of a pick me up!

My routine when I get up: take 1 capsule Amantadine, Plug in sauna and set heat to 140 degrees, eat a serving of yogurt set timer for 1/2 hour, spend 30 min in the sauna. Then I take the C/L and Shower. Then, after I’ve dressed for the day, I spend 10 minutes exercising on the Whole Body Vibration machine… [equivalent to an hour in the gym.]

After breakfast, I have been working in flower beds and garden. We still have bell peppers, lettuce, Swiss chard, onions, and a few tomatoes. I mixed up the apple cider vinegar, salt and dish soap recipe and put it in a spray bottle. I have to tell you. IT WORKED!! I feel … so much wiser. 🙂

We have been able to keep busy while sheltered in place, as our daughter has purchased supplies, as requested, to keep our projects on track. Plus, we finally received a cable internet service, so we have been moving things around to turn a space into an office for our daughter, so she can work from home 4 days a week, when Disney is ready for her back.

A gentleman in a Parkinson’s community chat room tries to share some clean humor each time he posts; today’s post follows

A frog goes into a bank and approaches the teller. He can see from her nameplate that her name is Patty Whack.

“Miss Whack, I’d like to get a $3 0,000 loan to take a holiday.”

Patty looks at the frog in disbelief and asks his name. The frog says his name is Kermit Jagger, his dad is Mick Jagger, and that it’s okay, he knows the bank manager.

Patty explains that he will need to secure the loan with some collateral.

The frog says, “Sure. I have this,” and produces a tiny porcelain elephant, about an inch tall, bright pink and perfectly formed.

Very confused, Patty explains that she’ll have to consult with the bank manager and disappears into a back office.

She finds the manager and says, “There’s a frog called Kermit Jagger out there who claims to know you and wants to borrow $30,000, and he wants to use this as collateral.” She holds up the tiny pink elephant. “I mean, what in the world is this?”

(You’re gonna love this.)

The bank manager looks back at her and says, “It’s a knickknack, Patty Whack. Give the frog a loan. His old man’s a Rolling Stone.”

(You sang it, didn’t you? Yeah, I know you did.)

Never take life too seriously.

★♫.•Pass it on!! Give someone else a reason to smile. ♫★

p.s. to my followers: I erred when I said 650 gr it should have said B1 [650 mg]

Too Busy to type

I transferred to another neurologist, on March 31st. When I handed the office person the requested DatScan & MRI summaries, reports from previous physicians, and lab results, I included a few extra, unsolicited pieces of information. She punched holes in everything to place in a binder. I did not notice until we were back home… I failed to give him my cover letter! It was still folded in my appointment calendar. :/

I’ve been elated with the results. At my last visit with my NO LONGER neurologist visit, he had me on three different medications and said he could tell I was under medicated, because I still had the Parkinson’s Mask. My new neurologist suggested I try… “Instead of eating a cracker with the Carb/Levo why don’t you try taking it with 8 oz of water 1/2 hour after you eat?” And he took me off of two medications the previous Dr. had put me on… but, he wrote a script for Amantadine, which is an antiviral drug used for preventing or treating people with the flu and is also a dopamine promoter, saying, “It may help with your drooling. Take one tomorrow, and let me know how it made you feel when I see you on Wednesday.”

When I went for the nerve conduction testing on Wednesday, I handed Dr. Choudhry my Cover page with details of my experience added at the bottom of the page. He told us not everything is related to Parkinson’s and he thought what I was experiencing was neuropathy. (he had also requested some blood work, looking for signs of diabetes.) He was surprised to learn I had very little loss of nerve conduction. I will most likely hand him a paper including links addressing foot dystonia and Parkinson’s patients, the next time we meet.

John told me, he observed Dr Choudhry use a hole punch and place the cover letter in the folder. I heard the doctor tell John, “She makes very good notes. They are very helpful.” So, are you wondering what I thought of the Amantadine?

I noticed at two hours after I swallowed the capsule, I was still drooling, But then twelve hours after, I was drooling again. But the most significant to me was the energy! After so many months of dragging myself from seat to seat, I had energy! I’d weeded, helped move some lumber, watered the garden and drug hoses from front yard to the back, yet, when I went into the house, I didn’t collapse into my chair feeling utter exhaustion! Instead, I prepared dinner for the seven of us.

The doctor asked me to take two a day. I have followed his directives and I have not been disappointed. I have weeded each morning. (The flower bed had been very neglected.) I have been up and doing things all day! I sure hope this honeymoon doesn’t get over for a long time.

I have looked at the possible side effects… none of them have bothered me, so far. But I found a note from the wife of a Parkinson’s patient, saying she had to discontinue it, because he lost his inhibitions. For an example: When they went out to eat, he would take slices of salami from the salad bar and put them in his pockets. She found the greasy remnants in his pockets when doing his laundry.

I am so grateful for the blessings I am experiencing during this journey. Yesterday, with the aid of two grand children, we completed weaving another plastic sleeping mats, while listening to Conference. Today, I think I have pretty well followed the law of the Sabbath… and done nothing, but listen to uplifting words. My goal for this week is to finish weeding the flower beds and work in the garden.

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