Another stone to turn over

When I run across something I haven’t heard about before I just have to follow the threads. The discussion was on how much carb/Levo a variety of pwp took, timing and side effects they had experienced.

Deb posted: ” I mostly only take c/l when I leave the house to exercise, run errands or socialize. At home without c/l I am a bit stiff and slower moving but still functional. If I take c/l for several days I get dystonia. I also take high dose thiamine which has made a huge difference in reducing almost all of my symptoms. https://stopparkinson.org/en/table-of-content/

When I clicked on the link… stopparkinson…Right up front I saw: Articles should not be downloaded and used for any purpose without the written agreement of the editor.

So, I just want to recommend you click on the link! Thiamine is in the B complex we take… but that provides only 25 mg once a day! That is a far cry from what they propose! I messaged to Deb, to ask her about her daily consumption.

Deb responded, “I use 500 mg -vitamin-b-1 . I take 2 at breakfast and 2 at lunch (2000 mg total). I was really struggling with balance and tremors but high dose thiamine gave me my life back.”

We exchanged emails… she typed, in part… “I hope the b1 helps you. It doesn’t work for everyone, but for me, it was life changing. I was diagnosed 4 yrs ago at 58. ….. A year ago I could not walk without a walker and just taking a shower would wipe me out for the day. I could barely move my body and needed help dressing. At my last appointment with my neurologist in Dec 2018, I was in a wheelchair and could barely stand up. They told me my only option was DBS surgery.”

“Just about 1 year ago, I stumbled on the information about high dose thiamine. Within 3 days of starting, my balanced returned and I no longer needed the walker. Within 3 weeks I was driving and going to yoga classes. It was quite an amazing change!”

“I have spent the whole year regaining my health and strength. I exercise every single day …… Some days I almost feel normal:-)”

SO… b1 is water soluble, so it doesn’t build up in the body or become toxic. A person can’t over dose on it. It is a vitamin, so it isn’t net work marketed. At .10 cents per capsule, I figure ‘nothing ventured, nothing gained.

I will keep y’all informed.. when the capsules arrive, the protocol I follow and ANY RESULTS… positive or negative.

Author: suerosier

In May of 2018, I was diagnosed with Parkinson's. After researching, I believe the symptoms began to manifest themselves years prior to last year. The purpose for my blog is to share what I have learned (with an index) to save others time as they seek for answers about, symptoms, therapies [and alternative things to try], tools I use, Parkinsonisms, recipes, strategies, clinical studies, words of encouragement or just enjoy the photos or humor.

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