A request

1Id figured posting this here, I could reach PwP who would like to assist.

WANG JUNG HUR
Dear Sue,
By chance, I came across your blog and was impressed by your meticulous record-keeping. I am a student studying Parkinson’s disease in Korea. As part of my assignment, I will be visiting Washington, D.C. from August 4th to August 9th to conduct 50 interviews, exploring the unmet needs of Parkinson’s patients in the United States. Therefore, I respectfully request your permission for an interview to ascertain the needs of individuals living with Parkinson’s disease. Additionally, I wanted to inquire if you could assist me in getting in touch with other Parkinson’s patients for further interviews. we could arrange a Zoom meeting. Your valuable time and cooperation would be greatly appreciated.
If our request has been well-received, we sincerely appreciate your generous help.
Please feel free to reply to me or contact me through my email: xocius@gmail.com.May health and happiness always be with you.
-Wang Jung Hur
Aug 05, 2023 – 02:25 pm
WANG JUNG HUR
Dear Sue
If you would be kind enough to grant permission, I can send you the Zoom link for the interview, or we can conduct the interview through this chat right now. It’s crucial for the success of this interview as it will enable us to create items for Parkinson’s patients. Your assistance is sincerely appreciated. Please, I kindly ask for your help.Aug 05, 2023 – 07:33 pm
You can also reply to this message via email and it’ll go to WANGJUNG’s Inbox

Fixel

Yesterday, John took me to visit the Neurologist at the Fixel campus at the University in Gainsville, Fl. Last year, the Doctor told me I was doing so well, she didn’t need to see me for a year. Well, the year is up, and I’ve been consuming the LuminAloe for an entire year and I am continuing to recognize additional improvements. While there, they had me visit with Physical and Occupational Therapists. I was told to keep doing the same things I’ve been doing. When they tested my grip, they reported that I was stronger than I was a year ago. And when they timed how fast I can walk, my speed was reportedly faster as well. I told them about an exercise I’ve added to help with balance… And they encouraged me to keep it up, that my balance had also improved. Yea! for more comprehensive nutrition.!

As part of evaluating my cognitive status, she told me 5 unrelated words and advised me that I should remember them. and about ten minutes she asked me to repeat the word she had said. I couldn’t remember any of them, then she gave me hints like Flower and that was enough to remind me the word was Daisey. She indicated that it was indicative that I had the beginnings of Parkinson’s dementia. If it was Alzymers I wouldn’t have any recall, even with the hints.

In one of the discussion groups I participate in, a gentleman said his doctor tells every PwP he sees to take Lithium Orotate. I remembered My General Practitioner had me using lithium Orotate, previously but somehow I had eliminated it from the battery of supplements. After I watched the video he shared with us, I have now added lithium Orotate back into my supplements.

https://www.youtube.com/watch?v=sA8AtSWPnRw

no, I’m not depressed, keep listening….You’ll learn how beneficial it is for brain health.

So, the neurologist told me they are starting up a new research study of PwP with dementia. If I understood correctly, They will do Mri’s or datScan’s at the beginning, and periodically as they follow the study participants.

I have high hopes that the LuminAloe will resolve my lingering symptoms..

Stiff?

I have a friend who has been given a diagnosis of Parkinson’s. She asked me a week ago, if I was having any trouble with my legs being stiff? She complained that her legs were getting so stiff, she was really struggling to keep going. I thought about it, and told her, “No, My feet swell a little bit in the Evening, but I am not at all stiff.

then during the week as I was thinking about it, I recognized I had been stiff… previously. They say we should write down how we are feeling when we begin to use the LuminAloe, because we may not recognize as we are improving because the normalizing of health takes place over time. As I was pondering her stiffness during the week, it dawned on me that I had been stiff. I had felt so stiff in 2021, I had resorted to using a toilet seat riser, to make sitting down easier, and stop falling onto the commode. Then In October my daughters gave me a bidet to help me avoid UTI’s and I had to remove the six inch lift. At that point in time, it was difficult to sit gracefully. Due to stiffness, it was more like I would fall on. So, gradually, without noticing, the stiffness has left me. I have even been able to weed the flower bed and plant some pineapple plants.

So, this week I told my friend, when she told me she feels like her legs felt like they are loaded with cement… I told her I believe it is the more comprehensive nutrition that I have been consuming that made the difference for me.

I am trully grateful for awesome nutrition !!!

As requested

A caregiver of a PwP asked for me to address prisim lenses. Somehow I acquired a resource guide, put out by “Neuro Challenge” foundation for Parkinson’s. I found an item on page 35.. ‘Eyesight and PD’ and I quote:

“Parkinson’s disease can have profound effects on the eyes that can result in a significant decrease in a person’s quality of life…. the lossof the ability to read, watch TV, or even just see the environment can be a more devistating side effect….”

“Blepharospams are forceful closures of the eyelids and are a common problem in PD patients. Besides making it hard to see since the lids are closing a lot, it can be very hard to get medicationsinto the eye. The spasms can be treated with injections of medications (ex. Botox) into the eyelids to reduce the spasms.”

“Dry Eyes are a very common problem in PD patients. The dryness is usually from a combination of decreased blinking, decreased tear production, and the eyelids not being in proper position……. If artificial tears do not take care of the problem, prescription eye drops, punctual plugs, or even eyelid surgery can help improve the tear film.” ( I personally have had the eyelid surgery, where they implant something into the lower lid, leaving less of the eyeball exposed.)

“Double vision, especially when reading is another common complaint.This can be from changes in the eye causing the light to split and images to appear double, or from a misalignment of the eyes giving different images to the brain. Sometimes the treatment can be prisms in the glasses. Other options include Botoxto the eye muscles or strabismus surgery to improve alignment.”

I wanted to redirecct you to a prervious post I typed about when I first learned about Prism Lenses.

Pisa Syndrome

Another Benefit

Since my diagnosis with Parkinson’s, I have struggled with my vision. It became impossible to text with my cell phone, because I simply couldn’t focus to see to hit the appropriate keys. That is when I learned about prism prescription glasses. They have been such a blessing, and they continue to be necessary for me to type my message to you here. But Something happened that tells me my eyes are improving. Where I volunteer each Thursday, there are some words posted on a wall, and I have needed to wear the prism lens in order to read it. But this past week, I couldn’t read the words with my prism glasses on, but was able to see the words when I removed the glasses. There has deffinitely been a change in my vision, for the better. I attribute the improvement in my vision to the more comprehensive nutrition of LuminAloe.

https://ascendsciences.net/luminaloe/
Scroll down to learn about the other ingredients included in the formulation https://ascendsciences.net/luminaloe/

aaaaaggghhhhh

I found the following in my drafts… I never sent it:

“.. i closed mthe kisik down without ever getting my order on it’s way.  I need to know how to delete a shoe mfrom an order… I guess I’m, technically challenged..

i tried to take advantage of the Cyber Monday code.  I attempted to sign in, and foound I didn’t remember my password.  so I typed in my gmail address. clicked on forgot password///   But THe email with the code wouldn’t work  Please, will I be able to get a pair of the shoes at the black Friday cclass, bedcause the chat wasn’t manned for the weekend.–

PS… I have Parkinsons and my fingers bounce on the wrong keys and I frequently hit the wrong key causing great frustration..”

As I reviewed my typing it brought to mind , i recalled a previous post:

silverliningsandparkinsons.home.blog/2019/08/20/typing-with-parkinsons/

Still true today

💜 I copied the following out of the villages Parkinson support Group Newsletter.

MLK DAY January 16th, 2023    
We often look to the “Parkinson Experts” for inspiration.  But perhaps we can find inspiration in the words of the late Martin Luther King, Jr which interestingly enough can apply to our Parkinson’s journey! “
“

“Flexibility, persistence, and re-evaluatiing the name of the game.  If you can’t do one thing (perhaps something you have ALWAYS done) then find something you CAN DO – and find a way “to keep moving forward !”