Pulling your own strings

What makes you have a good day? Whether you have Parkinson’s OR NOT! [Ian’s post outlines;]

I have made a list of things I can control…

  • Attitude,
  • Diet,
  • Exercise,
  • Emotions,
  • Effort,
  • Energy,
  • Motivation

If I find that there are things that I can’t control, then there are two options left for me. I can either delegate them to my support team ( doctors, caregivers, family and friends ) or I can simply try to ignore them.By me understanding that I have most of the control, I am instilled with a certain confidence.

In order for me to understand what I have control over , I must look back and figure out what makes me have a good day?

 

Ian Robertson shared… parkinsons-my-super-power/take-control

Physician, heal thyself

A dear friend shared an experience with us: Max (such a knowledgeable, inspirational giant) was on the road as a guest speaker in a “Know Your Religion” series, when he experienced an acute attack of ‘Montezuma’s revenge’(or food poisoning.) An hour away from facing the horrible prospect of disappointing a huge room full of eager conference participants, Max said an impression came to him… ‘Physician, heal thyself’

Being a scriptorian, Max knew Luke 4:23 And he said unto them, Ye will surely say unto me this proverb, Physician, heal thyself: whatsoever we have heard done in Capernaum, do also here in thy country. BUT this was the first time he saw the need for applying it in his own life.

So… He PRAYED… for healing… and when Max rose from his knees, he miraculously was able to shower, shave and make it to the scheduled venue, feeling well.

I recalled his healing story as I saw a blog entry that said: ” As you approach the world of Fighting Parkinson’s Drug Free, remember the words of Dr. Zhi Gang Sha, “I have the power to heal myself. You have the power to heal yourself. Together we have the power to heal the world.”

My purpose here isn’t to say we should be able to pick up our beds and walk. I actually want to type about incontinence … ponder the following blog entry:

“……………….As PD progresses, you wake up one morning and have a new symptom. Sometimes symptoms lessen when a new one takes prominence.

Recently My bladder urgency changed for the worse when I unknowingly had a urinary track infection (UTI). Not to get too graphic, but I was buying incontinence products in vast quantities and using them frequently. The sheer number of accidents were overwhelming. And I was severely depressed about the situation.

Other PD symptoms paled as I faced a life in diapers. Fortunately the UTI cleared up AND I took action to tighten my pelvic muscles. There are home use machines that an individual can buy that help women tighten the muscles near the bladder. I took a chance on one, and I am very very happy with the outcome. I am beating my incontinence. The savings I have by not buying adult diapers will more than cover the cost of the device.

My attitude has changed from despair to quiet optimism.”

The point I wish to make is… although every person with Parkinson’s has evolving symptoms, not every Parkie will experience help with symptoms in the same way. Faith that Heavenly Father knows me, and how to enable me to grow from the experience gives me peace. Some people wish to tackle their symptoms drug free, while others feel compelled to seek relief following mainstream protocols. BUT I hope everyone is willing to take advantage of advancements in tools which may instill quiet optimism.

Every Victory Counts

 You may want to go online to Davis Phinney Foundation for Parkinson’s and request the free manual ‘Every Victory Counts’ It is excellent and will greatly benefit anyone reading it. It is 400 pages long.  from Mr. Phinney’s intro:
“This race, a no-holds-barred winner-take-all type of event, demands everything from me. Let down my guard, and it’ll knock me flat – but by refusing to give in, by exercising daily, by eating well and most especially, by maintaining a positive attitude – I find ways to win.”

I’ve been browsing through posts on MyParkinsonsTeam.. an on line support group and social network. I have cut and pasted a few of the comments regarding attitude and patience that I found insightful.

ATTITUDE

“Good morning. I truly believe the best thing to do with the memory loss problem is to lighten up. All my friends and family know what to expect from my pd, so they are very patient with me. If I forget a word, I just call it “thingamagic” and go on with the conversation. I am bilingual, so if I recall the word in the other language, I’ll use it. Even my grandkids, who love to sit and talk with me, when I forget their names and call them “little girl”, they just say their name and go on like nothing happened. I am not trying to make light of anyone’s condition, but remember, it’s half illness, half attitude. The more you stress, the harder it gets. Have a blessed day. “

………………………….

“I read a lot , and I volunteer doing a computer job in which I have to keep my brain running normal . If you don’t use it you’ll loose it.”

………………………….

“I sometimes loose words but probably as often as any other 63 yr. old. What frustrates me is when I’m told by family and friends “ I just told you about that” or “ You already told me that”. I have a fairly high IQ so the loss of my short term memory really irks me. “

………………………..

“I just say,”uh oh Parkinson moment” and people accept that if you treat it as “Oh Well..”

……………………….

‘The only other answer for caregivers whose spouse/patient is experiencing this is patience. There are days that I don’t know how many times in 1 day the thought runs through my brain “It’s the disease not him.” That is what you have to constantly remember.’

………………………

“If you’re the person with the ‘memory fog’ then you don’t know what you’ve forgotten – that’s the scary part. I’m listening to Peter Gabriel ‘Don’t give up’ https://youtu.be/VjEq-r2agqc this gives me encouragement and a clue – learn a new song, learn all the words, sing along – learning something new utilizes the brain’s inherent abilities, and will sustain memory function … learn a new sequence of numbers (someones phone number! “

Marilee wanted to see

Marilee had such an impact on my attitude, I’d like to share her message.

To set the stage…We attended church in Brownsville, Texas. At the time of my ‘training’, John & I had seven children, John was a member of the ward Bishopric and a great deal of his Sabbath day responsibilities kept him busy.. out of the home. The boundaries of the McAllen Texas Stake were large. Our home was 60 miles from the stake center. I, as one of Marilee’s Stake Primary Counselors, had ridden with Marilee on assignment to visit a branch on the other side of the stake. I took the youngest two children with me.

Both of the children were asleep, as Marilee pulled the car into our drive. [This was in the days before seat belt restrictions] The three year old was asleep on the back seat, and the infant was asleep in my arms. Full well knowing what to expect after the oldest five had been home for several hours without adult supervision, I said, “I’ll take Stephen in and be right back to get Emily.”

Marilee alighted from the drivers seat, volunteering, “I’ll bring her in for you.”

“NO,” I protested… “You don’t need to. I’ll be right back for her”

After a couple more exchanges, Marilee explained. “You don’t understand. I WANT to SEE! Then when I get home, I won’t feel so bad about the condition of MY home.”

I laughed, and accepted her help. I made a mental note…”Let people see your messes, if it helps them feel better about themselves.”

Trust me.. I’ve helped lot of people ….feel really good about themselves or their efforts. We all love to give service to others… but when the table has been turned… and WE NEED a helping hand, accepting it graciously can be a challenge to learn. I hope each of us can remember something I learned from my father-in-law, Wally, when I offered assistance (service); ” you don’t have to do that, BUT who am I to deny you your blessings.”

“Laugh and the world laughs with you, snore and you sleep alone.” – Anthony Burgess