A healthy body needs tender mercy

As I have looked for insights into how a person with Parkinson’s or any illness should eat, I found the article Eating “Healthy” Destroyed Me VERY insightful. In the article by Ema Hegberg (found at Medium… link to article is at the end of this post.) Ema said: “I was doing everything right but it felt so wrong

“It was a gloriously golden, warm September afternoon and I was crumpled up in the fetal position on my bedroom floor, ugly crying. I had nothing left in me. I was a twenty three years old, newly married, employed, financially alright, plant-based vegetarian, and for the six hundredth day in a row, I felt horrible.

I was supposed to be packing for a leisurely weekend camping trip but I could not muster up a shred of mental, physical or emotional energy to pack or prepare. In frantic texts to my new husband, I described myself as “drained,” “zapped,” “dried up.”

Somewhere in my exhausted tears there was frustration. This should not be happening to me. I had been a vegetarian for a decade; for the past five years, I had been eating a “clean,” plant-based diet. I took a B complex, I didn’t have anemia, I drank vegan protein shakes almost daily even though they made me cringe, I drank enough water, I slept well. I should be ok. Yet here I was, crying at 2pm because I felt like zombie.

And then a strange thing happened. I had not had animal protein in ten years and I hadn’t craved it in nearly as long, but suddenly my body instinctively called out for meat.

A few days later, I ate chicken. A week or so later, I had sausage. I was a carnivore again. Slowly, I regained strength.

When I gave myself permission to eat meat again, I started to look at all the many other foods I had demonized and just how sick I had become.


Meat had been the first thing I nixed.

After that, I whittled down the list of “safe” foods more and more.

I would allow no processed foods; everything had to be in a form that my great-grandmother would recognize. I had read that on a wellness blog somewhere;…………….

I wouldn’t eat granulated sugar, because sugar “lights up” your brain the same way cocaine does. (As it turns out, so does sex and laughter.) All sugar had to be “natural:” honey, maple, coconut.

I severely limited my dairy…………………………………..

Gluten was of course suspect. It seemed to be like the tobacco of our time; everyone was doing it but silently it was killing us…………

Eggs were questionable. ………………

I’d never picked up a coffee habit, which was good because coffee could shorten your life. Green tea was better. No sugar, no milk.

Vegetable oils were just downright bad. ………………………….. So I only ate olive oil uncooked. But that was ok because I had coconut oil, a gift from the gods.


What did this leave? What was “safe?” Fruits and vegetables, beans, lentils, nuts, coconut products, olive oil, oatmeal, buckwheat, lentils, quinoa, yoghurt, honey, maple syrup.


I can come up with that list very easily because that is pretty much all I ate for four years. Seldom did I “cheat.” It wasn’t worth it and I knew it. Eat one of the forbidden foods and I would kick myself for hours or days afterward. Psychosomatically, I would feel uglier and fatter after slipping up and eating something made with canola oil, or a small piece of dark chocolate with refined sugar.

This is what I ate everyday for four years:

  • Breakfast: Oatmeal or “overnight oats” with smidgen of coconut milk and smidgen of honey (maybe), topped with walnuts and a banana.
  • Snack One: Apple or banana.
  • Lunch: A very large salad of organic spring mix with beans or sprouts, dressed with olive oil only.
  • Snack Two: Fruit, raw fruit and nut bar, a spoonful of nut butter, or a homemade smoothie.
  • Dinner: Another salad the same as the first, or perhaps quinoa with lots of cooked vegetables.
  • “Dessert”: Another large bowl of oatmeal, nearly identical to the first. Perhaps refined sugar-free banana bread slathered with coconut oil.

And every day, after eating like this, I felt so righteous. I did yoga almost every night. Each day, I walked all over my college campus with a twenty pound backpack. I got eight hours of sleep. Frequently, people commented on my weight and how delightfully “skinny” I was (five foot seven, 125 pounds). I was doing everything right; I was being so very good.


About three years into being stringently a “clean” plant-based eater, I started to have severe chest and stomach pain.

It felt like the food I was eating would get stuck in my esophagus. ………………………………….. I stumbled onto some research about b12 deficiency in vegetarians — something no doctor had warned me about — so I started taking b12. The pains abated.

Then my energy levels plummeted.

…………….. I tried a naturopath, who if nothing else recommend an elimination diet to figure out what food sensitivities I had (because I must have at least one). …………………………..


What I now know:

Daily, for at least four years, I had a deficit of several hundred calories. This did not cause me to lose any weight because my body had gone into starvation mode. Functionally, I had no muscle. The only micro-nutrient I got all of my daily value of was fiber; everything else I lacked, but specifically I wasn’t getting enough protein. I got maybe a tenth of the protein I needed, and it was never a complete amino acid profile. My total cholesterol was, at its lowest, 113mg/dL. There is research to show that cholesterol as low as mine increases risk for depression, anxiety, suicide, cancer and heart problems.

Other curious things from this time: ……………………………….. All of these things have resolved since my eating got broader.


I was devoted to several. Their promises of health equated to enlightenment in my eyes, because I’d never felt fully well. (In retrospect, I’d been severely anxious since age five and had very low self esteem.) The bloggers —almost entirely white females — were beautiful, glowing, thin, confident and they accomplished great things. They published books, the jetted off to Bali and Spain, the wore amazing clothes and did yoga in the sunshine. I was a sad, quivering American teenager who was homeschooled and friendless. Wellness blogs played upon every insecurity I had.

I’d found myself in this place, in no small part, because of wellness bloggers.

…………….. I believe I had an eating disorder, just not the kind everyone talks about. Mine was called orthorexia, meaning I was eating “too well.”……….

Although I’ve nearly always had anxiety, my depression, I believe, was largely sparked by my “healthy” diet. While people praised how saintly an eater I was, my body was begging for more nutrients. ……….. When I started to eat meat again, my depression began to fade.

I remember every detail of the first time I ate a processed food again; I had Late July brand tortilla chips. A very kind new boyfriend (now husband) accepted my issues with food and patiently walked me through the stages of my guilt. The same day we had dried organic pineapple rings that were lightly sweetened with granulated sugar. It was a big day for me.

Reconditioning myself to be ok with the foods I’d categorized as “bad” has taken time and there are moments when my twisted perceptions of eating creep back in. Now I eat just about whatever I please. My diet is still composed of mostly fruit and vegetables, and I am the most clear headed I can recall being. For the first time, I have muscle and I can tan.

What the wellness bloggers portray is no longer what I’m after. Yes, they look lovely but I’ve no way of telling if they actually feel present and strong. That’s what I want now, and the only way I can get there is if I care for my body in a way that it understands. Deprivation is not its love language. It needs bounty; it needs grace.

https://medium.com/@emahegberg/eating-healthy-destroyed-me-ac0abc546445

Having an impact

In a post in ParkinsonsNewsToday… Mary Beth Sykes wrote a poignant tribute about her father (An invincible father of six meets kryptonite.) in an attempt to find meaning.

………………………………

“When I was in high school, I followed the written journey of a classmate who was diagnosed with leukemia. Miles Levin struggled to comprehend a senseless battle through the exploration of words. He wore the armor of someone who was too young to fight cancer when he wrote, “Dying is not what scares me; it’s dying having had no impact.”

After a valiant fight, Miles died shortly after graduating from high school, leaving a trail of words behind him. At the time, I had no idea that his story would inspire a chapter of my life. Despite a heartbreaking diagnosis, he found a way to have the impact he desired.

‘Keep Fighting, Stop Struggling’

His thoughts reached far into the future, moving those who outlived him. Years later, Miles’ father compiled his son’s final words and bound them into a book titled “Keep Fighting, Stop Struggling: The Miles Levin Story.”

Miles’ story was the first written journey I followed. I wanted to understand how you could pour your pain into words so you wouldn’t have to carry it around anymore. Nearly 12 years later, I find myself asking the same questions I asked throughout his odyssey. But this time, I’m watching Parkinson’s disease overtake my dad like an evil villain in a Marvel movie.

My childhood hero has Parkinson’s. An invincible father of six meets kryptonite. The man who held my hand when I crossed the street and took me to the ER when I had pneumonia is battling a degenerative disease. And I wonder if whisking sentences together might help us make sense of the senseless.

Exploring illness through words

Today, I write because I love someone who struggles with loss daily. I write because I want to see the world from my dad’s eyes, shaking the illness until pocket change falls out. And I write because I want to understand the tidbits of information that only someone with Parkinson’s can taste.

Seeking answers

What does it feel like to shrink? To disappear from your circle of friends? To retire because you no longer want to be seen? What do you think about when you shake yourself awake at night? When it’s 3 in the morning and you can’t fall asleep again because your body won’t let you? Has muscular dystrophy made it harder to smile? Or are the laughs slower in the making? And where do you find hope?

I don’t want to live in the shadows of sadness. But I want to understand life from my dad’s eyes. I want to pick up the sentence where his words end and turn them into a story. I want to bridge the gap between the theoretical and reality, filling in the blanks with my own understanding of what it’s like to feel yourself change. Today, I’m beginning my own journey by tossing words onto a piece of paper in an attempt to find meaning through one man’s journey with Parkinson’s.

Strategies for preparedness

September is here, dragging National Preparedness Month (NPM) with it!

(What follows was taken from an article by Sherri Woodridge as found in the Parkinson’s News Today newsletter)

How do you prepare for a disaster? 

I recently read an article about a man with Parkinson’s disease who had a delayed flight and didn’t have any surplus medication with him. The airline staff was no help. He could have prepared by carrying a spare supply (or two, three, or four days’ worth) of medication with him at all times.

I started doing this a while ago, as you just don’t know what might happen. Doing this has saved me countless times from experiencing an unplanned “off” time. Or worse.

Why do we put it off? 

The old adage “It will never happen to me” comes to mind when asking that question. But the truth is that disasters, like a Parkinson’s diagnosis, can happen to anyone at any time, no matter their age, time zone, or bathroom decor. 

Shortly after the Loma Prieta earthquake in 1989, my in-laws invested in a good-sized duffel bag. This was to be their “grab-and-go” bag. They kept it in the closet next to the front door. It was ready to grab and go if they had to get out of the house in a hurry.

Experience had shown them what it meant to confront a disaster head-on. They weren’t wasting time preparing for another disaster.

When it comes time to discuss your disaster plan with loved ones (now!), make sure to designate a meeting place should the need to evacuate arise. Just as you should update the supplies in your bag, you also should occasionally update your meeting place to ensure it still works for everyone involved.

What should you include in your bag?

If you are at home when disaster strikes, you will be ready to head out the door with your emergency duffel bag. However, if you are at work or elsewhere, having a mini bag is recommended, such as a backpack or a small duffle bag that you can store in your car. 

Everyone’s bag will differ slightly, but to get you started, following are suggestions of what to include in your mini grab-and-go:

  • Copies of your license, Social Security card, medical information (doctors, medications, insurance info, medical hardware charger and info, emergency contact info, allergies, etc.), all sealed in a waterproof bag.
  • Medication for two to five days.
  • Cash (in smaller bills).
  • Small flashlight and spare batteries.
  • Multipurpose tool.
  • First-aid kit.
  • Bottled water.
  • Small snacks. 
  • Comfortable shoes and a lightweight jacket.

Large duffel grab-and-go suggestions:

  • Duplicate contents of the waterproof bag listed above.
  • Cash (again, smaller bills).
  • First-aid kit.
  • Extra medication.
  • Toilet paper.
  • Personal wipes and antibacterial soap.
  • Multipurpose tool.
  • Flashlight and spare batteries.
  • Water, freeze-dried meals, dried fruit, and nuts.

The list can go on and on, and you can find more suggestions on what to include at the government’s build-a-kit site.

Assembling a preparedness kit will give you some peace of mind should a disaster occur. At the very least, it should help to prepare you.

Perspective and Gardening

Dr. C’s Journey with PD – a column by Dr. C from: Parkinson’sNewsToday.com

I hate exercise! Both my pain and fatigue increase when I exercise. These are disabling Parkinson’s disease symptoms, and both trigger the fight-or-flight response that often manifests as “the grouch.” I have not found an easy way of exercising with Parkinson’s pain and fatigue, but I have found ways to shift my perspective. Shifting perspective opens up the possibility of experiencing enjoyment from exercise.

One of the most important parts of a Parkinson’s wellness map is exercise. But here’s the catch: It’s difficult to do with regularity. We know it works! Yet, knowing what is good for wellness is not the same as doing it. The doing part of exercise — showing up three to four times a week — is difficult with all the chronic disease barriers. It’s easy to feel defeated before even starting.

The way around this apparent Catch-22 is to shift one’s perspective on exercise. I mentioned the idea of shifting perspective in connection to wellness in a column about moments of well-being. The shift I need with regard to exercise is one that will get me off the sofa and into exercising. I am not getting off the sofa to do something I hate, but rather to do an enjoyable, creative project that involves exercise: landscaping to produce gardens. It’s a good exercise to keep the trunk strong, which helps prevent falls.

It takes a bit of perseverance to get into my work clothes, strap on the heavy work boots, find the hat and sunglasses, and then head out the door. Surveying the work ahead — which is sometimes a bit daunting — I start with light work to warm up. Walk, then shovel, and maybe rake, before getting behind the wheelbarrow to move gravel or dirt from one location to another. Pause to hear the birds sing, marvel at the variety of flower blooms and fragrances. Pretty quickly, the world slips away, replaced by the Zen of gardening.

My Fitbit reminds me when a time for medication is coming up and keeps track of my heart rate. I take lots of water breaks! By the time two hours have passed, my work shirt is drenched with sweat — as much as, if not more than, the amount of water I’ve consumed. In the Zen garden moments, the mind is free of the worries of Parkinson’s and vision problems. That feeling remains with me, not as a false euphoria, but as a deep-rooted sense of well-being.

There are many ways that shifting perspective can open wellness possibilities. A nurse shared a wonderful example. She was a smoker from her early teen years, and now in her 30s, she decided to quit. Six months without a smoke and she says, “I had this memory of how much I enjoyed smoking.” So, she bummed a cigarette and immediately got sick from smoking it. Recounting the event, she says, “I can remember the horrid feeling as clear today as if it just happened. I never had the urge to smoke again after that.” She shifted her perspective from enjoying smoking to thinking of it as a horrid, sickening experience. Shifting perspective opened up the possibility of wellness.

The ability to shift perspective may also improve our ability to adapt to stressful times and to become more resilient, and therefore more open to new possibilities. The shifting of perspective causes us to shift our focus to a new intention, a new possibility. I hated exercise, and my intention was to avoid it. The shift in perspective offered the new intention of enjoyment and the possibility of a beautiful garden, along with a healthier body, in spite of the chronic disease limitations.

Involving my neighbors

I am fortunate to live in a community where neighbors actually know HOW to be good neighbors. We do not all attend the same church, but we all believe in the same God. My neighbors share the fruits of the harvest… and another shares his garage and tools, enabling my sweetheart to repair the brakes on another’s car out of the hot Florida sun and the afternoon rain storms. Our neighbors “have our backs”.

While we have been away from home during this past month (for the Parkinson’s clinical trial)… we felt comfortable knowing our neighbors and friends would provide care for our pets, and having been given access to our home, in our absence, some even opted to paint some of our walls, in a very professional manner… (asking permission first, of course.) 🙂

We have the absolute best HOA in the world. They ask for (an optional yearly fee of $35.) Some of the things I am aware of: They hold fund raisers, collect recyclables, loan tables, award scholarships to High school Seniors and have a monthly newsletter. We have not attended their meetings, because they are at the same time as our commitment for Temple service in Orlando. Despite our lack of participation, we continue to feel accepted and included.

When an outside evil crept in, breaking into cars, neighbors called to check on each other. And for the safety of all, they worked to have broken street lights repaired.

This week, I was invited to join with other women in our community for their Tuesday swim. They rotate, gathering at various pools each Tuesday. I needed to decline, 😦 because Tuesday happens to be the other day of the week John & I are regularly gone between 10 am and 6:30 pm.

BUT.. yesterday… I thought … perhaps we could find some of our neighbors who might be interested in meeting regularly on another day of the week to attend a Qigong class if I volunteered to lead it.

I tried Yoga, but I found the poses were to harsh for me. But this works for me. Take a look. AND try it.

Tai Chi Qigong Shibashi Set 1 – This qigong is one of the most popular in the world and is designed to balance qi flow. It is an effective and easy-to-learn routine which synchronizes gentle movements with deep breathing.

Do you think I will get any takers? The link below is a 24 minute routine I enjoy doing. The recommendation is to only learn three motions on the first time… and adding on three more in your next session. At that rate, it would require 6 sessions to learn the entire routine.

My Favorite Qigong so far

Beauty among the Struggles

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This thought was taken from a site with a goal of Marriage strengthening… But I loved the sentiment and thought it definitely applies to many of the varied struggles associated with Parkinson’s.

Perhaps you can help me build a list of Beautiful side effects of a trial: What follows are quotes I have taken from other posts on community chats: [I’ll include additional posts on beautiful side effects, because I don’t want to make the read too long.]

…………………………… Take every opportunity to do things that you want to accomplish now. I have traveled more and experienced more since my Parkinson’s diagnosis than before.

…………………………… As you can see I live with hope; having found a silver lining of sorts in my diagnosis. I have been given a ticket off the stress track of teaching and performing and now I nurture other talents the Lord has given to me. Through all of this, I have met so many wonderful and caring people

…………………………… We are pushed to make decisions………. Now, I want you to think about this – you can’t stay in Monopoly jail forever; by your 3rd turn, you must roll a double, pay £50, or use a “get out of jail” card. It’s one of those 3 options or you lose the game and forfeit all you’ve worked hard for. Similar rules apply in this game called life – we can’t remain within the confinements of anxiety, bitterness, jealousy, hurt, anger, fear, denial, betrayal, self pity… and expect to win. We will lose. A time must come, dare I say the time is now, when we must make the decision to exit whatever prison we find (or have put) ourselves in. That decision could take on different forms – it could be accepting that apology you never truly received and moving on from past hurts, it could be swallowing your pride and making that phone call, speaking out loud or remaining quiet, starting a new venture or ending an old one.

……………………………..Regarding Rock Steady Boxing……….. Most people in our class have never boxed before (non contact boxing by the way – hitting a bag, never a person!) There are people who come in with walkers, on riding scooters, even wheelchairs. Exercises are modified individually to each participant. The coaches are wonderful and the camaraderie with others who have PD is life changing.

………………………….. We become less vain. …..”Today I went over an invisible border. A week ago I made an inner decision: everyone can now see my tremor”. ………………………….. . Solving the puzzle. Worry about others, more than we worry about what people think of us

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…………………………………… If I had taken the diagnosis of PD for face value and approached it as something that was outside of my control, I would have never hopped back in the driver’s seat of my life

………………………………….. We are enabled to connect the dots….. “The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well.” Ralph Waldo Emerson

 

 

 

9th… From Out-Thinking… When a change in care is needed

What follows is excerpts from a VERY, VERY LONG blog entry from ‘Out- Thinking Parkinson’s’ Detailing how Dr Gary Sharpe, Phd became terribly ill, poisoned by his PD medications, and the ensuing journey, hospitalization, failures from medical personnel, diagnosis, treatments and subsequent relocation. (As a pwp, I found Dr. Sharpe’s detailed story very fascinating and insightful and thus, I encourage readers to click on the link at the end of this blog entry.)

……………………………………………

“During my stint in hospital, I had plenty of time to think, and gather experiences and insights, about what my care needs actually are now, which I had somewhat buried my head in the sand about before. As perhaps these needs will go for other people with PD more generally, I have therefore sought to spell these out here in case they help fellow people affected by PD start considering their own needs too.”

The overarching theme of these needs is “Feeling Safe”.

1. I realized from being on the hospital ward that having people around me 24/7 is actually very important. This was confirmed to me during a week when I was isolated in a side-room off the ward, due to an episode of diarrhea. I felt much more vulnerable, much more anxious, and much more depressed than when I was on the ward. Indeed, I realized that when I was living at home with my parents, I would feel very unsafe if they went out and left me alone even for a couple hours – I would literally become scared stiff and my PD drugs were much less likely to work. This was also underlined in a moment of epiphany during a counselling session with a hospital mental health team member while in isolation. I burst into tears and cried “I’m so lonely; I’m so scared to be on my own”.

2. I need someone else to take control of my medicine, since if I am left to self-medicate, I will once again start self-poisoning and over-dosing. I know I will be unable to resist reaching for extra drugs whenever I feel fearful enough, am having a bad “off” period, or if I panic, and the rising drug burden cycle would begin again. I need this external control to be reliable enough such that the medicine will be delivered reliably on time, due to my massive anxieties around this. The complex medicine regime I have on leaving hospital, with both scheduled and “when-needed” PD pills and injections and painkillers (I’m still on morphine, but am trying to wean myself off it) means that someone would need to be on hand virtually every hour of the day.

3. I require good, nutritious food preparing for me and need to get back to, and then maintain, a healthy weight. This includes encouragement to eat, and reassurance to that I shouldn’t feel belittled in the instances I need assisted feeding when I am completely “off” during meal times.

4. I need caregiving by people who have a good understanding of the disease and my condition, and who don’t ignore, mock or disbelieve me – implicating that it is “all in my head”, which occurred a lot in the hospital, for example, is anathema to me and causes my symptoms to increase. I need knowledgable external oversight and monitoring of my physical and mental health, intervention if things start to go awry again, and reassurance and a calming voice when I frequently get over-anxious.

5. I need to be allowed and encouraged to move around and exercise/stretch while “off” to prevent rapid disease progression, not to be confined to bed or bedroom for fear that I might fall or freeze, yet be quietly watched over when I do try to mobilize.

6. I need the opportunity, encouragement and any required help to engage in plenty of social activities, to go outside and further afield, and to meet new people, without having to schedule such opportunities. I need caring oversight to ensure I don’t social isolate myself nor become agoraphobic again.

7. I need the opportunity, encouragement and any required help to engage in plenty of stress relieving and management activities, such as arts and crafts, singing, dance and music therapy, puzzles, etc.

http://www.outthinkingparkinsons.com/articles/hospital

6th… From Out-Thinking… neck and shoulders

11 ACCESSORY NERVE 

Cranial Nerve 11 – “supplies specific muscles which tilt and rotate the head, and the trapezius muscle, which works the scapula, including for shoulder elevation and movement of the arm away from the body.”

“Neck and shoulder problems are extremely common  in PD. For example, “frozen shoulder” is a very common initial mis-diagnosis, as was the case for myself. The head and shoulder movements mentioned above are particularly difficult for PwP to access.”

……………………………..This article gave me new insight. Eight years ago I had been experiencing shoulder pain. After turning 65, and qualifying for insurance, I mentioned the discomfort with trying to lift my arm. The physician suspected rotatory cuff and sent me to physical therapy. I went, but didn’t see any benefit. Then, after moving to Florida, at age 68, I visited with a chiropractor who, using pressure points while rotating my arm, showed me how I could get pain relief. Although the fix was only temporary, it was appreciated.

Funny thing is… after receiving my diagnosis for Parkinson’s and experimenting with the keto diet and trying hemp oil from the health food store…both my TMJ and my shoulder pain went away… as well as the sores at the corners of my mouth (presumably a side effect of my drooling). I switched up my diet after loosing too much weight on the keto diet… and previously had quit using the hemp oil. The sores at the corners of my mouth have returned, but so far, neither the TMJ nor the shoulder pain. I count my blessings.

Visual side effects

A person in the myparkinsonsteam.com community asked me what a prism is? I explained that it is a prescription lens… But then as I was researching APDA, I found this article on the effect of PD on eyes. It gave a name to what I have… ‘convergence insufficiency’ plus a lot more information: The link to the entire article is included at the end of this post.

“If a person with PD is having visual complaints, the first thing to consider is whether a simple refractive error is contributing to the problem. This is a common cause of vision issues for many people with and without PD, and as we age, it is normal for a lens prescription to need adjustment over time. A refractive error can be picked up by an ophthalmologist or optometrist. In order to diagnose an eye movement problem however, different types of evaluations need to be done that may not be performed at a routine visit with an ophthalmologist. Therefore, if you are having visual problems and a trip to the ophthalmologist with a new lens prescription does not solve the problem, ask for a referral to a neuro-ophthalmologist.”

“Neuro-ophthalmologists attempt to bridge the gap between ophthalmology and neurology by diagnosing and treating the vision manifestations of neurological disease. A neuro-ophthalmologist is either an ophthalmologist or a neurologist who has additional post-residency training in neuro-ophthalmology.”

“If an eye movement abnormality is found, you may be prescribed two pairs of glasses, one for distance and the other for close activities and reading. This often works better than bifocals. If you are found to have convergence insufficiency, you may be prescribed glasses with prisms. A neuro-ophthalmologist may in turn refer you to an ophthalmologist or optometrist with special training in fitting prisms. Often these are pediatric ophthalmologists or optometrists since convergence insufficiency is common in children. Prisms help to bend light to the proper focal point on the retina when the eyes are not able to achieve this on their own.”

“In terms of complementary and alternative therapies, art therapy has been seen to alleviate some of the vision effects associated with Parkinson’s disease.”

Abnormalities of blinking

“The blink reflex, which occurs normally at about 16 to 18 times per minute, may decrease in PD, sometimes substantially. Less commonly, the flipside may occur, with excessive blinking known as blepharospasm. Occasionally, there is apraxia of eyelid opening, which is an inability to open the eyes voluntarily.”

“People with PD who have blepharospasm may benefit from injections of botulinum toxin in the muscle surrounding the eye. This treatment, performed by a movement disorders specialist, ophthalmologist or neuro-ophthalmologist, is usually repeated every three to four months and can be very effective. Those who experience apraxia of eyelid opening can also sometimes benefit from botulinum toxin injections. In addition, lid crutches can be used to help keep the eyes open.”

External eye disease

“Decreased blinking can cause dry eyes. In addition, as a result of the dysfunction of the autonomic nervous system, blepharitis, or irritation of the eyelids can occur.”

“Blepharitis can be managed with warm, moist compresses, lid scrubs, and at times, medicated ointments. Dry eyes can be treated with artificial tear substitutes in an eyedrop or an ointment form. These treatments can go a long way toward making the eyes look and feel better, and increase vision.”

Sensory deficits

“Dopamine neurons in the retina can be lost in PD. The dysfunction of these neurons can lead to a loss of contrast sensitivity for some people making it more difficult to distinguish between items that are of similar color intensity. There can also be color vision deficits, usually along the blue-yellow axis making it harder to distinguish certain colors from others. Visual disturbances, such as visual hallucinations can also occur. Although it is difficult to treat the sensory deficits which at times can affect people with PD, sometimes certain lens tints can be helpful.”

https://www.apdaparkinson.org/what-is-parkinsons/symptoms/eye-vision-issues/