define… ‘Progress’

My neurologist referred me to physical therapy. I couldn’t go until they opened up the state a little. The main focus is to improve my posture, with a variety of muscle stretches and exercises, but when I told the therapist I’d discovered I could no longer skip or even do a little hop, he showed me a machine that enables me to experience jumping again. I did three reps of thirty little jumps on Monday, Wednesday and Friday. Yesterday, when home I attempted to jump, I was able to get a little air between my feet and the floor. 🙂

I am encouraged! Today I went to glean corn from a field. I would fill a bucket, and a brother would come along with another empty bucket to trade me. I wouldn’t have been able to lift the full bucket, but as I walked down between two rows of corn, I was able to move the bucket along, Since beginning the B-1 Thiamine therapy protocol, my balance has improved so much! And since beginning the Amantadine, my energy has been wonderful to experience. After two hours in the hot Florida sun, I was able to sit on the kitchen stool and shucked three dozen ears of corn, to prep for the freezer. Life is good.

For those PwP who are not seeing the type of improvement that I am enjoying, I thought I would share a perspective from Cory King’s blog ‘The crooked Path’ he defines “progress” as “no backward movement.” . “This ingenious technique usually works, at least partially.  As an example, it’s been used to coerce the Medicare program to continue to spend money on physical therapy for people with Parkinson’s when there is no clear evidence of improvement – as long as you’re slowing down the rate of degeneration, that’s progress”.


Author: suerosier

In May of 2018, I was diagnosed with Parkinson's. After researching, I believe the symptoms began to manifest themselves years prior to last year. The purpose for my blog is to share what I have learned (with an index) to save others time as they seek for answers about, symptoms, therapies [and alternative things to try], tools I use, Parkinsonisms, recipes, strategies, clinical studies, words of encouragement or just enjoy the photos or humor.

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