Gasp

I experience a complication listed under ‘additional’ symptoms of MSA… A Parkinsonism… Multiple System Atrophy.

  • Involuntary, uncontrollable sighing or gasping

This happens unpredictably where I suddenly suck in air VERY quickly. Usually it is of no consequence, however I did experience one pretty significant choking episode, exactly one year ago, which I documented.

May 26, 2018   As indicated previously, there are times I experience an involuntary sudden intake of air (gasp), followed by a release (sigh).  Today, the ‘gasp’ timing occurred just as I had taken a bite of a toasted grill cheese sandwich… inadvertently sucking crumbs of whole wheat toast into my air passage, which precipitated an inordinate amount of violent coughing.  Although breathing was labored, the passageway was never entirely blocked. Within a few minutes, the toast was finally coughed up.

This morning, as I was showering, it happened… that I gasped while attempting to rinse shampoo from my hair. Yikes! No matter that it was Melaleuca Herbal Shampoo… Bubbles impede air flow! I don’t know what kind of sound I made, as I struggled to breathe, but it was enough to panic my sweetheart.

It has been eight hours, and I still have shampoo breath and my voice is raspy, but the coughing has subsided.

I know there is something called aspiration pneumonia… so I looked it up: Aspiration pneumonia is a type of pneumonia that might occur if a person breathes something in instead of swallowing it. The germs from food particles, saliva, vomit, or other substances may infect the airways and lead to aspiration pneumonia.

I suppose it was good that I ingested an herbal concoction… shouldn’t have to worry about infection.

Strategies for eye care

May 2017,         I complained…”Something is wrong with my eyes.”  For the past three yearly exams, when I receive the glasses, everything seems ok.  But then I find I have so much trouble focusing, I find myself unable to read things like name tags , seeing everything in a blurr. Texting was becoming nearly impossible. Auto correct just added to my embarrasing typos.

Then, last year, I finally was referred to an Eye Dr, who determined my difficulty in seeing was caused by Oblique double vision.  They pointed out I have an accompanying tilt to the right…akaPisa Syndrome.  I could no longer use bifocals and transiitioned to using reading glasses with a prism and single vision glasses for longer distances.

This was the diagnosis which led me to discover, in my internet research, the first clue that led us towards the diagnosis… “…indicates oblique double vision & Pisa syndrome is a rare clinical entity usually associated with underlying neurodegenerative diseases such as Parkinson’s disease and Multiple System Atrophy.”

Today, I returned for my annual eye exam… the prescriptions needed tweaked. [and I found out our insurance only helps with eye wear once every two years. 😦 ]

Because my facial feelings are diminished, I do not blink frequently…and I don’t remember to use eye drops regularly, because I don’t realize they are dry. He gave me a strategie… to have four bottles of lubricant eye drops… placed strategically, where I’ll see them to be reminded to put drops in my eyes a minimum of four times a day.

He also told me I have an eye infection (who knew?) My instructions are to wash my eyes with baby shampoo and then put a salve on my eyes as I go to sleep.

I share the Doctor’s advice, for the benefit of others who also forget to blink.