I discovered a sight that addresses symptoms and explanations which I have found nowhere else. I have divided the things I found most interesting to be shared over the next week of posts.
“Dr Gary Sharpe, Phd, is a scientist and engineer by background, diagnosed with Early Onset Parkinson’s Disease in 2009. After six years of dying inside, he started “Out-Thinking Parkinson’s” in January 2016 in order to pursue pragmatic and practical solutions towards progressive symptom reduction for people with Parkinson’s Disease. Today, Out-Thinking Parkinson’s has become a major resource, where Gary and colleagues from around the world, who also have an insider’s perspective of PD, share their knowledge, philosophies and experience of living well with PD, and, also, record their stories of recovery.”
http://www.outthinkingparkinsons.com/
“Many of the major and common symptoms of Parkinson’s Disease are not very well explained by the “death of dopamine producing cells in the Substantia Nigra” scenario. However, atrophy of the Cranial Nerves in people with Parkinson’s (PwP) does very straightforwardly explain most of these major secondary symptoms, and, I believe, does so in a very common sense way.”
“This conclusion is important, because if correct, it means that no chemical “cure”, which addresses only the dopamine production issue, will, by itself, fix the causes of the other symptoms too. Indeed, undoing atrophy of any kind in the brain and body takes time and the patient application of suitable stimulation, exercises and therapies. I therefore recommend that we PwP do not just sit and wait for “the lure of cure” to ever materialize, but instead to err on the side of caution: I believe we need to begin the process of bringing our atrophied brains and bodies back from the brink, soonest.”
“Below, (i.e. within the week of posts) I also present a number of suggestions for Cranial Nerve stimulation techniques, which should help us in this regard, if we apply them daily, over the long term.”
NOSE
1 OLFACTORY NERVE
Cranial Nerve 1 – “transmits nerve impulses about odours to the central nervous system, where they are perceived by the sense of smell; the olfactory nerve is somewhat unusual among cranial nerves because it is capable of some regeneration if damaged.”
“The loss of sense of smell is one of the earliest manifestations and cardinal symptoms of PD.”
………………………………………..I can’t say how much my sense of smell might be impacted, but I have retained some. 🙂
Standing up to Parkinson's 