What would you say?

My husband, John, is simply the most awesome #1 support.

When I said I wanted a Rhoades Car, for bicycling. he didn’t flinch. Before our solar assisted vehicle arrived, he had installed a ramp up to the double doors and moved things around so we can use part of his shop for a garage for the Rhoades Car.

I read: “Sauna use has also been shown to increase brain-derived neurotrophic factor (BDNF).  BDNF is like fertilizer for our brains.  Indeed, increased BDNF can improve cognitive function and memory.” (Dr John Day)

Mht condition myparkinsonsteam
With the help of my sweetheart…

“Another benefit of infrared sauna… Detoxification of Chemicals and Heavy Metals… The skin is a major detox organ, and sweating through the skin is a critical human detox function, yet most people don’t sweat regularly or enough. The body is very effective at eliminating toxins via the skin (and the liver, and the poo), but the skin side of things only really works if you make your body sweat. But many of us sit in air-conditioned indoor environments all day, and even gyms with temperature control can be a tough place to work up a serious sweat. So in these type of situations, you completely miss out on a major source of toxin elimination: the skin.”

When I read about the benefits of infrared sauna… John didn’t flinch. When our very own infrared sauna arrived, he immediately set to work setting it up out in his shop, although it further cramped his work space. Additionally, he sits in the sauna and reads to me until our allotted time is up.

So… when I read Ben Greenfield said: “People who had four to seven sauna sessions of at least 20 minutes each, had the greatest benefits”, I thought…it would be much more conducive to daily use if we move the sauna inside our home. John came up with the perfect location. BUT… it will require significant effort. He suggested, we could remove the large garden tub from our master bath (since we always opt for the shower, anyway). I love the idea and convenience such a transition will provide.

Routine Variations

When I first joined the community (probably 5 months ago) I posted my exercise goals for accountability. In January, I posted my routine in this blog as I described my Ruby Slippers and WBV routine. I inclued a photo of my ADMI Fitness exercise platform at that time.

I have altered my exercise routine. I appreciate having the bar across the front for gripping as I do 5 sets of twenty squats (100) and 5 sets of twenty knee lifts.. raising each knee high enough to tap my arms holding onto the bar. I took a note from the rocksteady boxing and exercise my voice… LOUD counting with each squat and each knee lift. Then I strive to pull my chin in and attempt to tuck my shoulder blades into the back pockets while doing the last three minutes of higher vibrations for freeing up sluggish lymph through out my system.

I thought you might like to see some of the benefits I found claimed on the internet sites of makers of whole body vibration platforms.

From ADMI Fitness

“How can ONE HOUR at the gym be compared to 10 MINUTES on the whole body vibration machine? Whole Body Vibration has the name for a reason! When your body engages 97% of muscles in the same exercise your results are accelerated. At the gym you spend your time on your different individual muscle groups. It would be incredible to see someone working his or her abs, arms, legs and calf’s at the same time at the gym! As wild as that picture is in your head Whole Body Vibration does exactly that and more. “

“Balance: About 30% of people over the age of 65 lose their balance and suffer a fall each year. Whole Body Vibration is an effective way to maintain or enhance skeletal mass in low-mobility individuals without the risks associated with high-impact exercise. WBV stimulates the primary endings of the muscle spindles, activating alpha-motor neurons resulting in muscle contractions. Studies have shown that WBV is associated with increases in lower limb muscle strength. WBV also delivers mechanical loading to the skeleton, which increases bone mass and improves postural balance by strengthening skeletal muscles. Balance and gait are improved by enhanced muscle control effected by routine WBV exercise. Strengthening skeletal muscles has a direct effect on coordination and balance “

‘ Parkinson’s: Researchers from Germany compared the effects of Whole Body Vibration and conventional physiotherapy on levodopa-resistant disturbances of balance and gait in idiopathic Parkinson’s Disease. Gait assessments and upper limb control tests showed significant improvements on gait stability and posture, a significant decrease in tremors and less rigidity in PD patients receiving whole body vibration therapy compared to a control group with no therapy ‘

” The Health Benefits of WBV-Training are many, and the reason for this is because WBV stimulation affects not only your musculature but also your internal organs and glands, including your brain”

Increase muscle strength, especially explosive strengthPain reduction (such as with fibromyalgia)
Increase hormone secretion: IGF-1, testosterone, and human growth hormone (HGH)Counteract age-related muscle wasting  
Increase fat loss; WBVT in conjunction with resistance training improved fat loss in menopausal women.8Other research9 found WBVT was 54 percent more effective than traditional aerobics and strength training in producing visceral fat loss.Those using WBVT were also less likely to gain the weight backReduce cellulite; 8 to 13 minutes of WBVT, two to three times per week for six months was shown to reduce cellulite by 26 percent. When combined with 24 to 48 minutes of cardio, cellulite was reduced by more than 32 percent10
Increase bone mass and mineral density, thereby decreasing risk of osteoporosisImprove in blood circulation, which can also stimulate tissue healing. Three minutes on a vibrating platform doubles mean circulation for at least 10 minutes11
Increase flexibility and mobilityIncrease secretion of serotonin and norepinephrine
Improve proprioception and balanceIncrease lymphatic drainage
Decrease cortisol levels  Speed up recovery from injury
Improve fitness in the elderlyImprove neurological conditions

 

Infrared Sauna

Both movement disorder neurologists I’ve seen indicated … although not enough data has been gathered, to allow them to prescribe infrared therapy, they had heard some positive feedback and encouraged me to “feel free to try it.”

We read the claims:
“Infrared sauna surrounds you and penetrates deeply into your joints, muscles and tissues increasing oxygen flow and circulation.”
“Helps to remove impurities from your cells, specifically the cells inside our fat where our body stores waste and harmful toxins such as cholesterol and heavy metals.” 
“As your body increases sweat production to cool itself, your heart works harder to pump blood at a greater rate to boost circulation. This increase in your metabolism will burn calories.”
“Infrared sauna therapy can help keep blood pressure within healthy levels, lower cholesterol, reduce chronic pain and be of therapeutic value to patients with chronic congestive heart disease.”

“In animal models of Parkinson’s, near infrared treatment has been shown to rescue dopaminergic neurons, … In addition, near infrared light treatment corrects the abnormal firing activity of neurons in deep subthalamic brain regions that occurs in parkinsonian conditions. Various animal models of Parkinson’s disease shown improved motor control and locomotor activity, as measured by both mobility and velocity, after near infrared is applied.” 

We tried the infrared sauna at the gym. Although our insurance provides a membership at no additional expense to us, there were draw backs. We had no control over the temperature. If we went in the morning, it wasn’t warm enough to produce any sweat. It was twenty minute drive each way for 20 minutes of heat. John is waiting for the VA to schedule hip surgery, so if my chauffeur didn’t feel like exercising, it was just shower and go home.

So, because I intend to leave no clue uninvestigated… we set up our two person Infrared Sauna into a sweet place in John’s workshop. It also has
Chromotherapy, also called color light therapy, which is the process of restoring balance to the body by applying color.

Aware in Care

After I’d experienced several choking episodes, as a result of my Parkinsonism symptoms, I followed my primary care doctor’s recommendation to get a pneumonia vaccination. I’d read: “When thoroughly assessed it was found that the most common cause of death in people with Parkinson’s Disease was Pneumonia, which was the cause of death in 45% of people.”

Being proactive, when I learned about the Aware in Care Kit, I requested one. And I received it yesterday. The link is included below, for all proactive Parkies. Additionally, there are links to download the action plan, the medical alert card, medication card, fact sheet and reminder slip,,, in case you need any of them prior to the arrival of your bag. This is from the web:

“The Parkinson’s Foundation launched the Aware in Care campaign in 2011 to help people with Parkinson’s disease (PD) get the best care possible during a hospital stay. According to a recent study, three out of four people with Parkinson’s do not receive medications on time when staying in the hospital. With more frequent hospital visits and a high sensitivity to the timing and dosing of PD medications, people with Parkinson’s face great risks in the hospital.”

“To protect, prepare and empower people with Parkinson’s before, during and after a hospital visit, we developed the free Aware in Care kit with tools and information to share with hospital staff during a planned or emergency hospital visit.”

“Aware in Care kits can be requested from your local Parkinson’s Foundation Chapter or Center of Excellence. If you do not live in an area with a Chapter or center, you can order a kit online.”

Kit Contents

‘Each Aware in Care kit is filled with useful tools and information to help a person with Parkinson’s during the next hospital visit. Each kit includes:’

Aware in Care Kit

“Pack your bag with your Parkinson’s medication and materials below.”

Hospital Action Plan

“Read about how to prepare for your next hospital visit — whether it is planned or an emergency. “
Download the action plan >>

Parkinson’s Disease ID Bracelet

“Wear your bracelet at all times in case you are in an emergency situation and cannot communicate.”

Medical Alert Card

“Fill in your card with emergency contact information and place in your wallet.”
Download the medical alert card >> 

Medication Form

“Complete this form and keep copies in your kit for use at the hospital. If you download the form, you can fill it out on your computer before you print it out.”
Download the medication form >>

Parkinson’s Disease Fact Sheet

“Share the facts about Parkinson’s with hospital staff and ask that a copy be placed in your chart.”
Download the fact sheet >> 

“I Have Parkinson’s” Reminder Slips

“Share vital information about Parkinson’s with every member of your care team in the hospital.”
Download the reminder slip >>

Magnet

“Use this magnet to display a copy of your Medication Form in your hospital.”

 

Ruby slippers and WBV

Today, I want to share information on two of the tools I use daily. Both were gifted to me by the #2 leader of my pack.. my twin sister, Cheryl. She is certified to provide a therapy called Zone Restoration. Since she lives in Idaho, and I live in Florida, she typed; “I can’t ZONE your feet… so the closest thing I know is Reflexology.” So she sent me Reflexology insoles. [I’ll post more about that later] I slipped the insoles into some red slippers I received this past Christmas and wear them every time I use my Whole Body Vibration machine.

After John & I moved to Florida, and I’d shared some of my quandry over my baffling symptoms, Cheryl surprised me with a WBV. I’d seen the literature and claims … and desired to test it. I went to youtube to learn how other people use theirs and learned that different benefits are associated with the variation of vibration speed. Lower speeds are best for exercise and higher speeds don’t give muscles time to react, but are great for stimulating the lymph system. I even found examples from giving yourself a facial to doing the Kegel exercise.

The recommendation is to not use it for more than 10 minutes at a time. When I did my first set [while John ( my #1 leader of the pack) was fixing our breakfast]… I did two sets of 20 deep squats & two sets of 20 high knee lifts, followed by approx 5 minutes of posture holds (the first two as taught in this youtube) 3 posture  For all of that, I have the vibrations set at about 12. Then I ramp up the vibrations up to 70 for the last two minutes to free up any sluggishness in my lymph system.

The first visit I had with my Movement Disorders specialiat, I came away with a referral to a speech therapist. There I learned about LSVT . I Had no idea how soft my voice had gotten, and learned a great deal from my visits. . https://parkinsonsdisease.net/living-with-pd/voice-exercises/

The next time I step onto my WBV with my red slippers, today, I will do my exercises I learned from my speech therapist. I like to multi-task so I decided to attempt to add a challenge to memorize what I am shouting. So I enlarged a copy of The Relief Society Declaration,and posted it on the mirror, so I can read it with my Prism glasses. [That is a story for another day.]

The Relief Society is the women’s organization formed by members of . . The Church of Jesus Christ of Latter-Day-Saints

Image result for the relief society declaration

After I have ‘Shout/recited’ the declaration, I proceed to do facial exercises to target my drooling and Parkinson’s Facial Mask. These are done at 12 on the WBV. Facial (improve drooling, chewing food) Then I crank it up to 70 for the last 2 or 3 minutes.

Whew!! It took me a lot longer than 20 minutes, to type how I use 20 minutes of my day for exercise

Tools I Use

When I started the Keto diet, I used the chronometer app to aid me in my meal planning. But I wondered how I could tell when I was in Ketosis. You can pay a lot for a breathalizer… but I found one on line through the HouseofKeto. It gives me the peace of mind, to know I haven’t errored and fallen out of Ketosis.

When I chose to refine my diet a little, to the Keto-Alkaline diet, I ordered Keto-ph Urine Reagent Strips through Dr. Anna Cabeca’s website.

For the Keto diet, I created a yummy bread recipie. I had a 50 lb. supply of almonds in my food storage, but processing through my wheat grinder just gummed it up. I had a really good blender..(I thought) But I burned up the motor while making the third batch of Almond bread. So I now have a powerful Vitamix processor. [I’ll share the recipe in another post]

I have found when I get up in the night to relieve myself, I am stiff enough that sitting was more like falling on. A Raised Toilet Seat has simplified my task and improved my comfort.

We now have an Infrared Sauna in our shed behind the home. [I am so glad we live in Florida] I cut & paste from a web site… . https://clinicaltrials.gov/ct2/show/NCT00674895

“Observations from our research studies indicate that, far infrared rays provide energy to the body, improve the autonomic functions of the nervous system, restore the functions of the endocrine system, strengthen the immune system, improve blood circulation and increase the level of oxygen in the cells and promote the regeneration of muscle cells, nerves and brain cells.

It is hereby postulated that irradiation using far infrared, with wavelength between 5 to 20 microns, of the central nervous system, the endocrine system and the whole body could prevent, control, manage or possibly lead to complete rehabilitation of people who have Parkinson’s Disease

…………………………………………………………..”

My exercise aids consist of a Whole Body Vibration machine. [I’ll share benefits and my routine in a future post} Online exercise videos w/ walking sticks, 2 lb weights and a ball. And I am now the proud user of a tandem bicycle / Rhoades Car. Since it has a solar powered power assist, my riding partners don’t get worn out trying to get up the little hills. [Chris, the owner of the company, is an honorary member of my Wolfpack, He sends his support, offering a 25% discount to anyone purchasing a Rhoades Car if they give him my name… Sue Rosier or code #1084] What follows is from his Blog:


Special Needs & Rhoades Car


Don’t you love it when you create something and it ends up providing a new solution in addition to what you originally created it for?  Or when you finish a project and you look back and see how rewarding it was to see the fruit it produced?  As we’ve seen Rhoades Car move into different markets and offer a healthier lifestyle to individuals, families, and work-style to corporations, we’ve also seen how it can help and increase a positive outlook on life with young and old individuals with all different types of special needs.  It’s the most rewarding feeling when you get to hear from family members or parents of how a Rhoades Car has or could really help their special needs family member either get outdoors more and/or feel like they’re actually contributing to an activity with others.

With four wheels, two seats, and the open road, everyone can enjoy it.  It shouldn’t matter if you have something physically holding you back, you deserve some excitement and enjoyment on the road.  Rhoades Cars have a unique experience that allow you to ride on a stable quadricycle, sit on a comfortable seat, and either participate in the pedaling or not, it’s totally up to you.  Rhoades Cars also can be customized the person’s special needs to help them better enjoy and participate.  We recently had a customer request to have foot straps on the passenger’s right side as well as a seat belt.  This particular customer’s wife had had a stroke and they were both eager to get back out together and exercise.  Since they were both once avid cyclists, this was the best way for them to get back to an activity they enjoyed and could do it together.  That’s where we love to be able to customize is when a customer has a specific need, we have a specific answer.

As we’ve noted in a recent blog, one very important advantage Rhoades Cars have is the side-by-side seating.  Much different than a tandem experience, with our recumbent seating style, you really get to sit comfortably while engaging in communication with the person next to you.  It’s very similar to a vehicle so it combines the cycling experience of pedals with the seating experience of a car.

A few weeks ago we shipped a custom-made Rhoades Car to a developmental achievement center which specializes in helping adults with disabilities become as independent as possible.  This particle model had a specialized trailer on it with stable foot plates (and foot straps),a swivel seat, and a seat belt.  Since some of their adults could not participate in the cycling aspect, this allows them to go on the ride with others and still be able to enjoy the outdoors with everyone else in a stable and comfortable manner.  The trailer was specifically for someone to enjoy a ride outdoors and be able to take in the sights and sounds of nature during a ride.  We also have customers who suffer from diseases such as Alzheimer’s and Parkinson’s, where their Rhoades Car has tremendously changed not only their outlook on life, but in some ways increased their quality of living.

Rhoades Car’s owner, Chris Spann, has a special place in his heart for helping those with special needs or physical illness.  The former owner, William suffered a brain-stem stroke in December of 2006.  “If I could have had a Rhoades Car during my recovery, to enjoy time with my wife and kids, it would have been a game-changer.”  This was a strong feeling that contributed to Mr. Horton’s drive behind purchasing the company in 2015.  That same feeling and want to help those who may be suffering from various hardships, continues through Rhoades Cars today.

We have numerous customers and inquiries every week from parents who are interested in providing a better atmosphere for their kids.  From autistic to blind or vision-impaired to down syndrome, a Rhoades Car allows them to participate in a healthy and fun cycling exercise and depending on their level of engagement, can actually pedal or steer the bike.  Nothing else allows them the freedom to enjoy time with others outdoors AND get a great exercise.

We love hearing these stories from our customers.  We realize what we get to do is make a product that not only brings joy to so many for being able to be just like everyone else, but it brings back a simple pleasure that so many of us take for granted everyday, which is being able to enjoy being around the people we enjoy and love the most.  Whether it’s a family member with special needs or someone who has suffered from a life-altering disease or illness, we enjoy providing a customized product that helps fight against the mental and physical hardships that come with special needs and disabilities.  Here at Rhoades Car we consider it a privilege to partner with families and individuals to help bring smiles and joy to everyone, no matter what life throws at them.