A Sugar that is good for us

Please be sure to check out the update 8/21/21 at the end of this post.

Glyconutrients are a group of sugars extracted from plants and thought to be essential for the body by helping cell-to-cell communication.

I first heard about glyconutrients as I listened to an interview about restoring our bodies to normal with Dr. Reg McDaniels as I was trying to learn about his product called New Eden. Their glyconutrients are taken from Aloe.

I posted on a forum for PwP that I was going to try it, and received (an opinion) that “It is just a sugar substitute… nothing to it.” So I typed glyconutrients into a search where I saw Mannitol credited with having glyconutrients. I remembered seeing posts where various PwP had attempted to steer us to Mannitol. ………………………………………………………………..

That is when I found research findings made in Israel (you will need to read the script, unless you are fluent in their language) on the web site for Mannitol. “Homeotreat developed a unique MANNITOL powder, containing, not only the natural sweetener (Made from vegetables such as onions, pumpkin, seaweed, mushrooms and more), which causes a decrease in the production of the alpha-synuclein protein but also the MUCUNA plant, which supports the increase in the amount of essential ingredients to healthy brain function.” ………………………………………………………………….

Mannitol is a type of carbohydrate called a sugar alcohol, or polyol, which are water-soluble compounds that occur naturally in many fruits and vegetables.

There are basically eight glyconutritients that scientists know about. These include: – Fucose – Galactose – Glucose – Mannose – N-AcetylGalactosamine
– N-AcetylGlucosamine – N-AcetylNeuraminic acid AND– Xylose

…………………………………………………………………

Then I discovered another web site with this statement : “– mannose and galactose — are the most important of all the different Glyconutrients. In fact, these two Glyconutrients act as the commander in chief for all immune system and cell to cell communication processes. Based on real scientific evidence, there is absolutely no validity whatsoever when it comes to the so called eight essential sugar theory that many companies tout in selling their Glyconutrient products. The bottom line is that the more you increase the level of other plant sugars in a Glyconutrient product other than Aloe Vera galactomannans, the more real health properties are diminished.

“It turned out that MPS had been isolated from Aloe, and extracted and dried as a powder extract utilizing a proprietary method. More specifically, MPS is a specific molecule called the galactomannan that is a combination of galactose and mannose in long linear chains.” –this one was pricy.. $190./30 day supply

.

I saw that Mannitol powder is sold (some claiming to be 100% pure) from lots of sources. locally at Walmart. drug stores or health food stores as well as online from many sources. It is sold as a low glycemic sweetener. The price is extremely cheep compared to the three I listed above. And from posts of users I have concluded, not as effective… depending on source and purity, etc…

=…………………………………………………………………..

……………………………..Approved as an injectable Medication

As a medication, it is used to reduce intraocular pressure in the eyes, as in glaucoma. The mannitol is a new solute in the intravascular space, which increases the tonicity of the blood plasma. The increased tonicity of the blood plasma draws water out of the vitreous humor of the eye and into the intravascular space.

Diuretic: It can be used in a lung test to diagnose asthma and other breathing problems.

……………………………………………….As a supplement:

Mannitol powder it may have some health benefits when taken as a supplement. Mannitol may support the digestive system, kidneys, and bladder.

Mannitol is a type of sugar alcohol used as a sweetener. It is used in diabetic food as it is poorly absorbed by the intestines. In addition to being found in whole foods, mannitol is commercially produced to help reduce calories from sugars in packaged foods. Its most common application is in chewing gums, both as a sweetener and as a powder to keep pieces of gum from sticking to its wrapping and machinery.

Mannitol has a variety of uses and it is also used to reduce elevated pressure in the brain (Central oedema) and in the eyes. Mannitol is a common low-calorie sweetener approved by the FDA and EFSA. ……………………………………………………………..

Sugar alcohols, including mannitol, have been shown to benefit oral health in several ways. They don’t contribute to cavity formation. When used as a sweetener in gum, the act of chewing also protects teeth from cavity-causing bacteria by promoting the flow of saliva. The FDA recognizes mannitol and other sugar alcohols as beneficial to oral health ……………………………………………………………..

When John and I began the New Eden, we were just doing the recommended dose. But since that time, I have learned that is considered a maintenance dose. For acute out of balance bodies, Dr. McDaniel recommends doubling the daily intake. I’m sure with two of us using from the same cannister, we will run out before the next cannister is set to arrive. [if on autoship, the cost including shipping is $109. /330 grams]

Since I had opted to purchase of the product from Israel, which includes the Mucuna. [but the glyconutrients aren’t derived from Aloe] I will alternately use the Mannitol in place of the New Eden… and attempt to notice any variations in body responses. for price comparison… 900 g / 109.90 +shipping from Israel $25.85 = $136.75

John said, ” the way I presented it seemed a bit negative.’… Not my intention. If you listen to the linked videos, you may feel more positivity.

8/21/21 By way of update

Dr McDaniel has, since I typed this, gone into business with his son A new company is very nearly ready to launch. AscendSciences.com With a Projection to launch internationally and able to place larger bulk otders, they are able to get the products that were in the new Eden at a considerable price reduction plus Dr McDaniel has been able to incorporate 5 additional nutrition enhancing products to make the best formula ever. The percent of the Aloe Mannitol has not been lowered.

The new product Q800+ will be available for something like $88. very soon.

Speech and voice disorders

Research shows that 89 percent of people with Parkinson’s disease (PD) experience speech and voice disorders, including soft, monotone, breathy and hoarse voice and uncertain articulation.

People with Parkinson’s (PD) may notice changes in or difficulty chewing, eating, speaking or swallowing. These changes can happen at any time, but tend to increase as PD progresses. Just as PD affects movement in other parts of the body, it also affects the muscles in the face, mouth and throat that are used in speaking and swallowing.

Beyond producing the sounds of speech, PD symptoms like a frozen or masked face can make it harder to communicate the emotions that go along with what you are saying. Others may misinterpret this as a lack of interest in the conversation or aloofness. In addition, some people with PD struggle to find words, and so they may speak slowly. And in other cases, PD causes people to speed up their speech, so much that it may sound like stuttering.

HOW does a person know if they have speech problem? Ask yourself if:

  • My voice makes it difficult for people to hear me.
  • People have difficulty understanding me in a noisy room. 
  • My voice issues limit my personal and social life. 
  • I feel left out of conversations because of my voice.
  • My voice problem causes me to lose income.
  • I have to strain to produce voice.
  • My voice clarity is unpredictable.
  • My voice problem upsets me.
  • My voice makes me feel handicapped.
  • People ask, “What’s wrong with your voice?”

Bradykinesia

Bradykinesia or slowness of movement is one of the main symptoms of Parkinson’s.  The general effect of bradykinesia is that it takes more time and effort to complete daily tasks, which can result in fatigue. 

When experiencing slowness of movement a person with Parkinson’s may notice the following:

  • Lack of spontaneous activity e.g. arm swing diminishes
  • Fine motor coordination is reduced e.g. handwriting becomes smaller
  • Changes in walking such as short, shuffling steps
  • Episodes of freezing or periods of immobility
  • Difficulty turning over in bed or rising from a chair
  • It takes longer to do things

Managing Bradykinesia

Some people with Parkinson’s find physiotherapy helps to improve their symptoms.  A physiotherapist can recommend exercises and techniques to help with your mobility.

Medications for Parkinson’s can also help improve movement and reduce slowness. 

Impacted by rigidity

Rigidity or stiff or inflexible muscles is one of the main symptoms of Parkinson’s, alongside tremor and slowness of movement. Not everyone will experience all of these symptoms.

In Parkinson’s rigidity is often most noticeable when you move a joint through a circular movement. The movement often feels as if the joint is moving through a number of cogs, known as ‘cogwheel rigidity’.

Some people also experience a constant resistance to motion throughout the entire range of movement, known as ‘lead pipe rigidity’.

Parkinson’s and Rigidity

Rigidity can stop muscles from stretching and relaxing. It can cause:

  • Stiff muscles
  • Inflexible muscles
  • Pain and muscle cramps
  • Fixed ‘mask-like’ facial expression
  • Inability to swing arm or arms when walking
  • Difficulties getting out of chairs, turning over in bed and turning around
  • Difficulties with fine movements such as writing or doing up buttons
  • Postural change
  • Fatigue

I spoke to a PwP who said, “I have PD induced COPD and PD induced restrictive lung disease..(rigid diaphragms and chest wall muscles.) PD is suffocating me at 43% vital capacity as my lungs collapse.”

.”

Through Sarah’s eyes

There are links included in her letter. I’d encourage you to take time to view them. Most of them seemed to be YouTube – Ted talks.

IF I could turn back the clock and write a letter to every single one of my clients on the day they were diagnosed with Parkinson’s, this is what the letter would say.” (she is a physical therapist)

“Dearest Friend,

Today likely didn’t go the way you planned nor wanted it to go. Whether you’re feeling confused, frightened, angry, or apathetic, I want you to know I’m here for you. I know a new diagnosis of Parkinson’s can knock you for a loop, but consider this letter an invitation to a new chapter of your life – one that is much brighter than you may be imagining at this moment.

I think the tendency is for someone to say “I’m sorry” right about now, but I’m going to hold off on that lingo because I have a feeling you’re likely not looking for sympathy. Instead, I want to offer my support. Please don’t consider this a hand-out (I know you’re not looking for that either) – I just ask that you consider what I’m about to say with a brave and open heart. Many people that I care about have stood where you stand now with questions, looking for hope. I’ve learned a lot watching them go through this process and, while I won’t pretend to know all the answers, what follows is my best advice for the next chapter of your life…

#1 You are Not broken.

It may be your default to take this diagnosis as a sign that your body is broken or even revolting against you but your body is simply telling you it needs serious TLC. It’s likely been telling you this for a while but up until now it’s been easier to ignore than pay attention to. Today your body shouted loud enough for you to hear it so now begins the journey of listening and tuning in to what it’s telling you.  Your body is resilient and always seeking health and repair – you just need to give it what it’s asking for.

#2 Your Future has Not been decided for you.

There will be naysayers and fear mongers, but a diagnosis of Parkinson’s is just that – a diagnosis. It’s a label for a collection of symptoms, not your prognosis or a crystal-ball prediction of what your future holds. It’s okay to believe you’ll get better, not worse, and that you’ll never need a wheelchair. This isn’t denial if this belief is paired with deliberate action on your part to improve your health and maximize your vitality. Your future is in Your hands, no one else’s, and your attitude is everything.

#3 Don’t Hide.

Your instinct is likely to hide your diagnosis and pretend all is well. The thought of walking into a Parkinson’s support group may make you want to cry – after all, who wants to be face-to-face with a future they’d rather not confront? Luckily, Parkinson’s symptoms aren’t contagious! Joking aside, the Parkinson’s community is incredibly strong and supportive and is an amazing resource. Just because others present with certain symptoms doesn’t mean that’s your fate and learning from their experience is valuable beyond measure. Find a local support group, meet-up, or just another like-minded person with Parkinson’s (PWP) who can act as a confidant through this process. There are many online support groups and you’ll definitely be able to find one that matches your current situation and attitude. Seek out resources that build you up and have a positive impact. Remember, there is strength in numbers and no one can (or should) go at this alone. JOIN OUR TRIBE – SIGN UP FOR OUR NEWSLETTER

#4 Start Exercising. Now.

The evidence is strong – regular exercise is neuroprotective (meaning it protects your brain) and promotes neurogenesis (meaning it helps develop new connections in your brain). The buzzword is “neuroplasticity” which means your brain is always molding and changing based on what you ask it to do. So, challenge it (mentally and physically) to change it for the better. The absorption and utilization of dopamine, the neurotransmitter that is lacking in Parkinson’s, is significantly boosted with a challenging and frequent exercise regime. The bottom line: You shouldn’t miss a day of exercise in the same way you wouldn’t miss a day of taking your medication. Yes, it’s that important! If you’re not an exerciser.. well, you are now!

#5 Small changes = Huge difference.

Observe your diet. We swallow food just like we swallow pills – why expect that one will have an affect on your symptoms and the other will not? Toxins come in many forms – pesticides, hormones, pollution, food additives and sugar, to name a few – and they burden your immune system and brain. Eat as organic and close to nature as you can afford. Explore supplements but realize you can’t supplement away a bad diet. (Healthy) fats are your friend. Find activities that calm your mind and fill your soul – do them daily. Meditate. Laugh. Prioritize sleep – this is where your brain heals and flushes out toxins. Treating your body like a temple will dramatically affect the way you move, think, and feel.

#6 Take Action Now, don’t wait.

You may feel you’re “not that bad”. Your symptoms are minimal and you feel you can pretend they don’t exist and for a while, yes, you’ll be able to go on as if nothing’s ever happened. Your urge to “stay normal” in the eyes of others for as long as possible is strong – I get it. However, when it comes to Parkinson’s there is no waiting, whether you have symptoms or not. Taking immediate action to uplevel your exercise program, manage your stress, regulate your sleep cycle, and overhaul your nutrition is crucial to preserving your precious brain and is the only option. Medication will help your symptoms and DBS may reduce your tremors, but these are simply masking the dysfunctions in your system, not fixing them. Very similar to the way money compounds in your bank account – not changing your habits now will only compound your problems down the line. Starting today, put yourself first and make your health and future your top priority.

#7 Find Acceptance to Dissolve Fear

Accepting where you are is different than surrendering – it inspires action instead of passivity. Embrace where you are in this moment. You may have heard the saying, “What you resist, persists”, so don’t push away your feelings. Instead, feel them fully. Cry.. Scream.. Laugh.. By being here, right now, you’ll find that you’re OK. Fear has no place here because you’re not in any immediate danger. The fear comes when you leave this moment and your mind floats into a fabricated future. Stay present and focus on what you can do in this moment. I believe in you. 

“There is something you must always remember: 
You are braver than you believe, stronger than you seem, and smarter than you think.

— Winnie the Pooh

With all my love and support,

If you recently received a diagnosis… READ THIS

When I joined The Invigorated Community on line discussion group for those diagnosed with Parkinson’s and their caregivers, I received this message. IT has been worthwhile for me to re-read.

I met the woman who changed my life forever one month into my professional physical therapy career. 

She walked, slowly and timidly, back to my treatment room for her initial evaluation with very little trace of emotion on her face.

Once she was settled comfortably in her chair, she looked up and said: 

“When I was diagnosed with Parkinson’s disease, my doctor told me I’d get worse over time and likely be in a wheelchair in 5 years. That was 3 years ago. 

Since then I’ve stopped walking with my husband in the evenings because I feel so unsteady and I’m terrified of falling again. I’m tired all the time. My back and shoulders ache and my right arm is so weak that I had to give up doing my own laundry and cleaning the house like I used to. 

I want to be able to take care of myself and get back to doing the things I used to do, but Parkinson’s won’t let me. I honestly don’t know what you can do for me, but my doctor told me I should come, so here I am.”

This was the first person I had ever treated with a Parkinson’s diagnosis and her story immediately sparked a fire in my heart

How could her doctor be so sure of her fate?

So, I asked her to give me 30 days to prove to her that she didn’t have to succumb to the disempowering belief that there was nothing to do but take her medications, get her affairs in order, and pray for a cure. 

Fortunately, she agreed. 

We spent 3 days a week together, and she worked hard . Bike intervals… balance pads… walking drills… squats (so many squats!)… twisting and bending in all directions… and, of course, exercise homework for the days she didn’t see me… 

Until we reached our 30-day mark.

Not only was she back to walking a mile each evening with her husband, but her back and shoulder pain was also gone. She had enough energy to do her laundry and was regularly hosting their family and friends at their home she was able to clean herself. 

She looked at me, smiling, and said: 

“I never thought I’d be able to do these things again. You gave me my life back.”
  
Heart . Explosion . 

Immediately I knew that this was where I needed to be. 

I don’t tell you this story to brag about myself or to proclaim myself some mystical healer. 

I tell you because I want you to know this: 

If you’ve been told that there’s nothing you can do but take your medication, get your affairs in order, and wait for a cure, you don’t have to believe it.

What follows is a letter I wrote that I wish I could have given you on the day you were diagnosed with Parkinson’s disease. 
Big hugs,Dr. Sarah King, PT, DPT
Founder of Invigorate PT & Wellness
She begins her letter

“If I could turn back the clock and write a letter to every single one of my clients on the day they were diagnosed with Parkinson’s, this is what the letter would say.”

“Dearest Friend, [Her words are so uplifting and beneficial… check back tomorrow, for the ‘rest of the story’.]

Why so much differentiation of symptoms?

I think the explanation found in “The Parkinson’s Protocol” By Jodi Knapp might give us a clue. She says “Dopamine activates five different cell receptors:” I think my dopamine loss is predominantly in the D3. I will tell you why.

The theory is, a person has lost 80% of their dopamine before they are diagnosed. I have not had normal responses to events when others found great pleasure for a long time. I had blamed my inability to laugh on my father’s strict reactions to my laughter in my youth. But when I read the islands of Valleja and nucleus accumbens reinforce the effects of pleasure, and emotions such as joy and laughter, it gave me reason to reevaluate.

 D1, found in the cardiovascular system, as well as the cortex, striatum and limbic system of the brain. The actions spurred by dopamine and D1 control the growth and development of brain cells, and behavioral responses. They also modulate the actions of the D2 receptor.

 D2, found in the brain but mostly in the basal ganglia, where learning and motor control take place. Together with D1, it is implicated in behavioral reinforcement.

 D3, found in two areas of the limbic brain called islands of Calleja and nucleus accumbens, which are involved with reinforcing the effects of pleasure, and emotions such as joy and laughter.

 D4 is involved in exploratory behavior and motor coordination. Most medications for the treatment of Parkinson’s target this receptor.

 D5 is also found primarily in the limbic brain, and has a role in emotions, behavior, long term memory and smell. D5 receptors have a higher affinity for dopamine, meaning they bind to it more easily.

Going to the internet to learn more about D3 “The most important function of nucleus accumbens is to process and analyze the rewarding and reinforcing stimuli… It is also important in spatial and instrumental learning.” “The islands of Calleja are a group of neural granule cells located, where it aids in the reinforcing effects of reward-like activities.

Case in point: I allowed my son to throw me out of a perfectly good airplane attached to him for a skydiving experience as a reward for his successfully ceasing smoking.

If you watch the video, you will perhaps note I am so relaxed as we exit the plane.. like a rag doll. I had no fear or high expectations, and although I tried to smile for my sons, I felt no joy or excitement. Just a little confusion, about what I should do with my hands.

By way of explanation, there are a couple blank spaces on the video. All the divers had cameras on their heads and the dive was photographed from different angles. When he pulls the first chute it is to slow us down so we are falling the same rate as the photographers. When he pulls the second chute and it looks like it jerks us up, it is because the cameras continue falling at the faster rate, creating the illusion.

I ‘fibbed’ when I said it was fun… because I didn’t want to dampen their excitement. I feel more pleasure in watching the video than I did the day it was taken.

At the end My son, Stephen, who took me (because Tom and I didn’t have enough combined weight) made a comment about my calm.

Apathy

When I was listening to a presentation, I heard the speaker say… ‘a person with Parkinson’s may not exercise because of apathy.’ I wondered if that might be MY excuse for not remembering to exercise as often as I should? NO, I’m just easily distracted, by researching and working to create blog posts, and weeding, or gardening, or volunteering to do service projects… I want to do research on family history, and write more family history.  In other words:   I simply never found exercising rewarding.

Still, I wonder, can you have apathy about one thing, if you are able to focus on other things? According to ‘Psychology Today’…

“What, exactly, is apathy? In a sense, it’s something like falling in love. You can describe it all you want, but until you’ve experienced it, you can only guess at what it feels like. Paradoxically, what makes the feeling of apathy unique is that it’s essentially the feeling of not feeling. It’s something that at some point in your existence you’ve encountered. Whenever you feel that something vital is missing from your life, yet lack the  drive to pursue it, you’re afflicted with this curiously “emotionless” emotion.”

“Through much psychological research, it’s now accepted science that you must experience feelings about something if you’re to take personally meaningful action on it. And without any compelling emotion to direct your behavior—and apathy literally means “without feeling”—you just aren’t sufficiently stimulated to do much of anything.”

“True, apathy is a feeling. But it’s also an attitude. And sadly, that attitude is one of indifference . . . unconcern . . . unresponsiveness . . . detachment . . . and dispassion. Such an attitude saps you of so much energy that you feel lethargic, listless, and enervated—almost too “paralyzed” to act—and certainly without the will to do so. Which is why apathetic individuals are easily identified by their very passivity. Their interest in confronting life’s challenges is seriously compromised. They just don’t care enough. And frankly, they don’t care that they don’t care.”

………………… ” So they can’t think of anything worth striving for.”

I liked the attitude a fellow PwP shared:”there is no easy answer I have yet found to apathy. It is always there, as patient as the law of gravity. Fight it directly and it will temporarily retreat. The only partially successful response I ever found was in Sun Tzu’s “Art of War”. “When faced with an unbeatable foe, you do not fight, you deny him victory.”

Learned in the trenches ***

I found the following entry by Nell’s son, touching ( and a little frightening).  So I’ll put the link in the index under FEAR.   But I doubt she had the benefit of what I’ve learned about thiamine B1.  Plus the research for a cure holds out promise and hope.

 My mother Nell Canady, battled Parkinson’s for 18 years.  Over the years our family were witnesses to her decline in the quality of life. The disease would have taken her sooner if not for her steady routine of proper diet and exercise and will to live like a fox-holed Marine. My mother was as strong as they come. Before her diagnosis in 1998 she walked everyday, drank nothing but water, and ate mainly vegetables. As her youngest son, sometimes caregiver, and witness to this disease, I want to share some things we learned in the trenches over the years.

Parkinson’s is NOT a dragon to slay, not by your inner might, or toughness. You don’t, nor can you, fight the disease this way. Parkinson’s is NOT a chess match. Meaning, it will make a move and you counter with your move, expecting to one day pronounce checkmate! It can’t be outsmarted no matter how many moves you make, or how smart you think you are.

Once Parkinson’s is diagnosed; there’s just the fightFight to live. Fight to not permanently break down. Fight to see your grandchildren grow up or graduate. Fight to stay mentally strong. Fight to do the things you once did or love to do. Fight to not let it get the best of you. Fight to keep your strength up. Fight to keep your dignity. Fight to keep your quality of life. You’ll have good days and bad days. Some days Parkinson’s gets the best of you. Don’t be hard on yourself during the bad days; just remember to keep fighting.

However, fighting Parkinson’s disease IS about how you choose to respond to whatever it throws at you. To fight Parkinson’s disease and live to fight another day is most of the time, the reward.

My Best Advice:

  • Stay active and keep your body moving and exercise. The exercise helps fight the disease and slows the disease’s progress.
  • Do all the things you always wanted to do before Parkinson’s takes to you a stage your will, physical ability, and mental toughness can’t overcome.
  • Remember to give your spouse, family member, or caregiver grace. As a patient, you don’t face Parkinson’s alone. You and your loved ones are sailing into uncharted territories both physically and mentally. Give yourself and those you love room to fail and have bad days.
  • Quality of life is everything. Remember our goal was never about living a long life; it’s about living a life of quality. Do what you need to do to fight for your quality of life.
  • Mostly importantly, draw near to God and He will draw near to you. Keep God close.

As a caregiver, Parkinson’s disease took me to places physically, mentally, and spiritually I’ve never been and then beyond. It was frustrating when I couldn’t understand my mother when her speech was slurred and everything inside me just wanted to help. If she fell, I cursed my physical weakness. I discovered it’s difficult to lift deadweight of 120 pounds off the floor without help.

Remember what I tell you; you can’t control Parkinson’s, you can only control how you respond to what it throws at you. The last couple years of my mother’s life she was not able to take a bath in a traditional tub or shower, so bathing was reduced to a small washbasin. One day I assisted my father in giving her a bath, and changing her bed linen.

I found myself in a role reversal. I was taking care of my mother like she took care of me when I was a child. It had a profound effect on me. Later that night I awoke at 2 a.m. and wrote the first thing that popped into my mind. I’m a writer and I keep a journal on my nightstand. I turned on the lights and penned what was on my mind. The following was the poem that came from that event and was later published by The Olive Press.  

LIVING THROUGH PARKINSON’S

I wash my mother with a rag.
A slick bar of soap floats
in a small tub of water;
life reduced.

Her nakedness is open to me.
The woman who bore me is vulnerable before me.
I’m imagining my primal birth:
dark water over softs rocks in a brook.
I emerge covered in blood and mud
from the creek onto dry land,
gasping my first breath.

My mother cradles me in her arms, wipes mud from my eyes,
pulls me to her breast.

As a child, she washed me
and put me to bed,
but those footie pajamas are worn thin;
there’s a hole in the sole.
Winnie the Pooh’s honey is gone.

My mother’s hands, once strong,
now covered with thin soft skin like wet tissue,
lie trembling in her lap—
hands that held me, fed me,
spooned bitter medicine into my mouth,
now helpless, worthless stones of flesh.

I cut a fresh diaper with scissor-snips.
I slip her diaper over her feet.
Spots of red nail polish speckle her toe nails,
reminding me everything fights to hold on—

I lay her down in bed like a child
upon fresh linen.
I fix her pillow.
She likes to watch westerns on TV,
so I turn it to her favorite channel.
She’s seen this one a hundred times,
and so have I.

 

Constipation / Gastroparesis

The enteric nervous system controlling the GI tract is part of the autonomic nervous system which is affected in PD. Gastroparesis occurs in most people with PD, as contractions in the GI tract become sluggish. This is why constipation is so common in PD, often appearing years before motor symptoms.

The ways in which Parkinson’s disease can increase the risk of constipation include: lack of dopamine (a neurotransmitter) in the brain – impairs control of muscle movement throughout the body. Bowel muscles can become slow and rigid.

Constipation is a common complication of Parkinson’s disease, but it can be managed with lifestyle changes such as adding extra fibre to your diet, or medical treatment.  Many people who have Parkinson’s disease notice difficulties with constipation before they notice motor symptoms such as tremor or stiffness.

I’m going to simply direct you to a document that covers just about every thing about what can help.. except I didn’t see my solution. I take 1 capsule of Tripple Magnesium Complex (ordered from Swansons) along with 1 capsule of Cape Aloe 250 mg (ordered from NaturalHealthySolutions.com) each morning and each evening. Both products attract fluid to the digestive zone helping things to be soft enough that, with digital stimulation, movement can be iniated.

https://www.betterhealth.vic.gov.au/health/ConditionsAndTreatments/parkinsons-disease-and-constipation