Aware in Care

After I’d experienced several choking episodes, as a result of my Parkinsonism symptoms, I followed my primary care doctor’s recommendation to get a pneumonia vaccination. I’d read: “When thoroughly assessed it was found that the most common cause of death in people with Parkinson’s Disease was Pneumonia, which was the cause of death in 45% of people.”

Being proactive, when I learned about the Aware in Care Kit, I requested one. And I received it yesterday. The link is included below, for all proactive Parkies. Additionally, there are links to download the action plan, the medical alert card, medication card, fact sheet and reminder slip,,, in case you need any of them prior to the arrival of your bag. This is from the web:

“The Parkinson’s Foundation launched the Aware in Care campaign in 2011 to help people with Parkinson’s disease (PD) get the best care possible during a hospital stay. According to a recent study, three out of four people with Parkinson’s do not receive medications on time when staying in the hospital. With more frequent hospital visits and a high sensitivity to the timing and dosing of PD medications, people with Parkinson’s face great risks in the hospital.”

“To protect, prepare and empower people with Parkinson’s before, during and after a hospital visit, we developed the free Aware in Care kit with tools and information to share with hospital staff during a planned or emergency hospital visit.”

“Aware in Care kits can be requested from your local Parkinson’s Foundation Chapter or Center of Excellence. If you do not live in an area with a Chapter or center, you can order a kit online.”

Kit Contents

‘Each Aware in Care kit is filled with useful tools and information to help a person with Parkinson’s during the next hospital visit. Each kit includes:’

Aware in Care Kit

“Pack your bag with your Parkinson’s medication and materials below.”

Hospital Action Plan

“Read about how to prepare for your next hospital visit — whether it is planned or an emergency. “
Download the action plan >>

Parkinson’s Disease ID Bracelet

“Wear your bracelet at all times in case you are in an emergency situation and cannot communicate.”

Medical Alert Card

“Fill in your card with emergency contact information and place in your wallet.”
Download the medical alert card >> 

Medication Form

“Complete this form and keep copies in your kit for use at the hospital. If you download the form, you can fill it out on your computer before you print it out.”
Download the medication form >>

Parkinson’s Disease Fact Sheet

“Share the facts about Parkinson’s with hospital staff and ask that a copy be placed in your chart.”
Download the fact sheet >> 

“I Have Parkinson’s” Reminder Slips

“Share vital information about Parkinson’s with every member of your care team in the hospital.”
Download the reminder slip >>

Magnet

“Use this magnet to display a copy of your Medication Form in your hospital.”

 

On the bright side

So… I have to admit I was disappointed with how our trip to Gainsville went. Basically, the Doctor just wanted to put me on a medication that has bad side effects. When I said, no thank you, he said, “You can just be followed by your primary care doctor.”

So what we did accomplish… They have a base line for my symptoms,,, so If I return in the future, I am in the system. AND he also said, “I would change the diagnosis from Parkinson’s to Parkinsonism.” Because I have multiple symptoms, typical with Parkinson’s, but not the tremors.. plus other symptoms as seen in MSA. There is a test that could be given to determine what parts of the brain are losing the dopamine. But knowing wouldn’t change the treatment. And I don’t desire to have radioactive stuff injected into my veins, anyway.

DaTSCAN is a special technique that provides detailed images of the dopamine neurons (nerve cells) in the brain. The Food and Drug Administration (FDA) approved the use of DaTSCAN for differentiating PD from other conditions in 2011. The patient is given a radioactive agent into a vein.

I asked if I could speak with a dietician, because I am losing too much weight on the Keto Diet, but both dietician’s were in a meeting, so one is supposed to call me. (I’ve made a decision, without her call.) The thinking behind the Keto diet was to get more oil to my brain… and to increase my energy. Sadly, I do not recognize any pick up in my energy level… but when the scale said 107 Lb. this a.m., I decided to add more fruits, beans, etc… to balance my diet more. I’ll still have to say no to products with white flour or sugar, of course. Back to the matra of moderation in all things. I will also continue to focus on the gut health guidelines… Bone Broth, and fermented foods.

The bright side in my day came when I checked the mail. My Aware in Care kit had arrived. I’ll explain what that is, tomorrow.

Three Kings

I knew Dr. Kyle D. Christensen when we lived in Payson, Utah. We even attended emergency preparedness classes in his home. One thing I observed, while in his home was a personal infrared sauna. [More on the sauna in another post] Dr. Chrtstensen is very sharing with his insights. The following came across my desk in July, 2018. Perfect timing for my research. I had to try it.

Turmeric & The 3 Kings

The Golden Spice

 Dr Kyle Christensen DC July 30, 2018

Turmeric is referred to as the golden spice and was considered more valuable than the precious metal gold during the time of Christ. It is thought that the Spice Traders known as the Magi or 3 Kings presented to the Christ child Gold (Turmeric), Frankincense and Myrrh as gifts of healing as well as wealth. 

We now combine the rich tradition of Gold/Turmeric, Frankincense and Myrhh for your benefit to reduce pain and inflammation. These classic herbs carry with them healing power to body, mind and spirit. These herbs have been documented to assist in the recovery of Arthritis, Autoimmune Disease, Neurologic Diseases, Type II Diabetes, Lung conditions, Alzheimers Disease as well as Cardiovascular Disease. Fenugreek has been added to this formula because of the great enhancing effect when combined with turmeric. Fenugreek has repeatedly been shown to increase the bioavailability (the bodies ability to use) of turmeric by 24.8 to 45.6 times! Wow! We just couldn’t leave it out.Turmeric – latin name:Curcuma longa is used as a food and traditional medicine for:

  • Rheumatic pain
  • traumatic swelling
  • Menstrual problems
  • As a Blood Purifier
  • For Skin Disease
  • Digestion issues

 Turmeric is known to:

  • fight the effects of aging
  • protect against blood sugar imbalances
  • reduce inflammation and pain
  • protect the heart and nervous system
  • fight cancer and its effects

BioAvailability (how well it is used in the body)Many manufacturers have combined turmeric with black pepper based on a study that suggested this combination to be 20 times more bioavailable. Unfortunately this study has not been reproduced. If others cannot verify your discovery, you’ve got to question the validity of the results. Fortunately, multiple and repeated studies have discovered and confirmed the spice Fenugreek increases bioavailability 24.8 to 45.6 times. Turmeric with fenugreek also crosses the Blood-Brain-Barrier and stays available in the blood stream three times longer than turmeric alone.  Repeated Studies show that turmeric (especially when combined with fenugreek)

  • Reduces mental Fatigue
  • Increases Arterial Flexibility
  • Helps with Depression
  • helps with Diabetes
  • reduces Inflammation 
  • increases microcirculation helping kidney function and eye health
  • alleviates Chronic Skin disorders
  • Lowers triglycerides and cholesterol
  • Helps with pain management
  • Supports and reduces autoimmune attacks on the body
  • helps with digestion particularly with GERD (Gastro-esophageal reflux disorder)
  • Used to treat Inflammatory Bowel Disease
  • Helps to treat Fatty Liver Disease (non-alcoholic type)

WOW!! Turmeric is truly one of the great herbs that can benefit nearly everyone.

 Frankincense Boswellia species

  • One of the best CANCER fighters
  • Arthritis – reduces joint pain
  • Lowers Inflammation
  • Ulcerative Colitis
  • Crohn’s Disease
  • Bronchial Asthma
  • Anti-Depressant
  • Anti-Anxiety
  • Prevents Autoimmune Disease
  • Speeds up healing of Infections

 Myrrh Commiphora molmol

  • Used to treat Hayfever
  • Anti-Bacterial
  • Anti-fungal
  • Anti-Parasitic
  • Anti-Cancer
  • Skin Health
  • Relaxant
  • Digestive support
  • Diarrhea
  • Hypothyroidism

Fenugreek Trigonella foenum-graecum

  • Heartburn relief
  • Type I and II Diabetes
  • Balancing Cholesterol
  • High Fever Remedy
  • Lowering Blood Sugar levels
  • Reduces Menopausal symptoms

Introducing our 3 KINGS Formula

 Want to save 89% on this amazing new turmeric supplement? Make it yourself! Purchase our 3 KINGS kit – mix the provided herbs, and put them in capsules yourself (easy with the included capsule machine and capsules) and you can make 1,000 capsules for $95.50 – compared to over $850 at retail price of our Turmeric Forte.
Give us a call and we can get you set up with this fast and effective formula. 801-360-0749

Blessings, Dr Kyle Christensen June 2018 

I got the ‘machine’ for filling the capsules. It is a bit time consuming… but way less expensive than the Standard Process Turmeric Forte.

I began consuming the “Three Kings’ mixture of Turmeric, Frankincense, Myrrh & Fenugreek on Aug 15th  A person doesn’t get ill, overnight, so I must expect the benefits to not totally manifest benefits immediately.  The formula I use to approximate the time for significant health changes to begin to manifest is: 1 month for every decade of age.  Thus, I being 70+, marked my calendar Mid MARCH 0f 2019.. as a target, to decide if I wish to continue the protocol any longer…  I take three capsules, 3 times a day and have not noticed any  negative side effects. 

Dr. Christensen forwarded the following link to GreenMedInfo in August.

How WHOLE Turmeric Heals The Damaged Brain
Long considered impossible to accomplish, new research reveals how a simple spice might contribute to the regeneration of the damaged brain.

 

Rock Steady Boxing

On The Invigorated Community testimonials keep popping up about how much Rock Steady Boxing has kept them going and how important it is in their plan of attack.

Yesterday morning, as I gave my grandsons their morning wakeup call, I noticed one of the boy’s punching bag and asked if I could borrow their gloves… which they promptly provided, cautioning me to not hit it so hard it fell into the mirror and breaks it. 🙂

I then wondered if I could find a workout on the internet. I learned there is a Physical Therapy that offers Rock Steady Boxing in the Villages near me. And after watching the informative videos below… I see there is a LOT more to it than just hitting a bag. The emphasis is on Forced Intense Workout.

This Youtube tells about the original Rock Study Boxing in Indianapolis
https://www.youtube.com/watch?v=uw32zOwbih4

This Youtube shows the wide diversity of therapies employed.  
https://www.youtube.com/watch?v=xnFw2SKjcHU

 

Sparked by a conversation

As I visited with a couple of my friends while we ate lunch (in the temple lunchroom) yesterday, we were talking about my blog and health in general. A question came up: What supplements do you take?

“Funny you should ask”, I said. “I can’t hardly find time to put something on the blog, for researching other sites I find. Last night I found an eight part series by Dr. Mark Hyman about FUNCTIONAL Medicine. I was very impressed with how well he presented the concepts.’

I also found (and included excerpts from) an article where he listed the nutritional supplements he feels are most important.

I recommend everyone view at least #1 of the Dr.’s series, if you have, or know anyone with a ‘diagnosis’ of ADD, anxiety, depression, OCD, bi-bolar disorders, etc… https://brokenbrain.com/01-epidemic/

I already consume the supplements in his primary list.. AND I do not remember him mentioning the #1 medicine for Parkinson’s Consider intense exercise as your most important daily medicine.

These are excerpts from the article Written byMARK HYMAN, MD

Here’s How to Heal Our Broken Brains with Nutrients

What leads to a broken brain? Most of us never learn how to manage our energy and bodies. Instead, we use drugs like sugar, caffeine, and alcohol to self-medicate and manage our energy and moods. We don’t connect our behaviors and choices with how we feel.

The key insight is that your brain is an organ that’s connected to everything else happening in your body. Fixing your brain starts with fixing your body: optimizing all the inputs and taking out the bad influences. The brain is resilient and can recover and heal when given the right conditions. ……(see article)……………………Even if you do all those things correctly, you might not be getting the right amount of certain nutrients that support your brain and body. That’s where supplements come in.

Think of nutrients as fertilizer for your brain. These little helpers improve communication and connections. ………………………………… Here’s how I approach optimizing nutrient support.

Start with the Basics

These nutrients are foundational supplements that cover the bases you might not—probably aren’t—getting from food. They feed your body and feed your brain. I put nearly all my patients on these supplements.

When choosing supplements, you should absolutely choose quality products. Not all supplements are created equal, and the wrong supplements—those with things like potentially reactive fillers or inferior forms of nutrients—can create more harm than good.

Fortunately, even among professional brands, none of these supplements are expensive. These are the foundational supplements that I recommend everyone take:

  1.  A high-quality, high-potency, highly bioavailable, broad-spectrum multivitamin/mineral. This contains optimal amounts of the full range of vitamins and minerals in their correct forms. You will probably need to take 2 – 6 or more capsules (depending on the manufacturer’s recommended dose).
  2.  Extra magnesium. Research shows about 75 percent of us are deficient in this calming mineral that plays a part in over 300 enzymatic reactions in our bodies. Take 200 – 400 mg of magnesium citrate or glycinate before bed in addition to what is in your multi. This relaxes the nervous system and muscles while calming your brain.
  3.  Extra vitamin D3. Because so many of us work indoors all day, more than 80 percent of the US population has insufficient levels of vitamin D, which our bodies synthesize from sunlight. Research shows vitamin D deficiencies contribute to a wide range of problems including dementia. Ask your doctor for a vitamin D test and if your levels are low, work with him or her to optimize them.
  4.  Omega-3 fatty acids. Our brains are nearly 60 percent fat, so it should be no surprise that not getting sufficient dietary fat can adversely impact this organ. Chief among those fatty acids for your brain are eicosapentaenoic acid (EPA) and docosahexaenoic acid (DHA). These omega-3 fatty acids are critical for supporting brain function and mood, regulating metabolism, and preventing diabetes and inflammation. Most of us need more than our food delivers, which is why I recommend a high-quality supplement. 

  5.  Special methylation factors like folate, B6, and B12. Methylation is a key biochemical process essential for the proper function of almost all of your body’s systems. It occurs billions of times every second; it helps repair your DNA on a daily basis; it controls homocysteine (an unhealthy compound that can damage blood vessels); it helps recycle molecules needed for detoxification; and it helps maintain mood and keep inflammation in check. To keep methylation running smoothly you need optimal levels of these B vitamins. Without enough B vitamins methylation breaks down, and the results can be catastrophic. Your multi will contain some B vitamins, but I find many patients do well taking an additional B-complex multivitamin.
  6.  Probiotics. These beneficial bacteria can improve your digestion, reduce food allergies, and reduce gut inflammation. Gut health plays a powerful role in brain health. When you don’t have the right gut diversity, inflammation and things like leaky brain can occur, setting the stage for diverse problems ranging from brain fog to dementia.

Going Deeper with Supplements

I frequently use other supplements beyond these foundational nutrients to address specific brain conditions. (See the entire article at this link) https://drhyman.com/blog/2018/01/16/heres-heal-broken-brains-nutrients/

  1. Glutathione precursors. Glutathione is your body’s master antioxidant that also recycles other antioxidants, which are critical for cleaning up free radicals. When left unchecked, these free radicals lead to massive cell destruction (including brain cells). A great way to get glutathione is with a lot of cruciferous rich vegetables such as broccoli and collards. Various supplements including lipoic acid, N-acetyl-cysteine, and quality grass-fed whey protein all serve as precursors to help your body make glutathione.
  2. Support your mitochondria. These little power plants in nearly all your cells fuel your brain and body. Nutritional deficiencies, low levels of antioxidants, exposure to toxins, allergens, infections, and stress can all damage your mitochondria. “If your mitochondria are not working very well, then that organ doesn’t work very well. In the brain, that means that you begin to have problems with fatigue, pain, irritability, and cognitive decline,” says Dr. Terry Wahls in our Broken Brain interview. Nutrients you can use to optimize mitochondria include L-carnitine, NADH, lipoic acid, and coenzyme Q10. When you don’t get enough of these nutrients, your mitochondria have a much more difficult time producing energy, compounding the problems they face from the onslaught of ever more free radicals. Your brain cells fire more slowly, your metabolism slows, and your ability to process toxins shuts down.
  3. Try calming nutrients. Mood disorders like anxiety and depression are at epic levels today. Fortunately, we have a wide array of supplement options to address these brain conditions. GABA (gamma-aminobutyric acid) is a nutrient that calms the brain from too much of the neurotransmitters epinephrine and norepinephrine. It is like a brake on overstimulation in the brain. When you have low levels of GABA, it is harder for you to relax after your body has released these excitatory neurotransmitters. Other supplements that can improve conditions like depression and anxiety include L-theanine (an amino acid in green tea), 5-hydroxytryptophan (5-HTP), inositol (usually found as a powder), and herbs like Rhodiola rosea.

I recommend working with a Functional Medicine practitioner to address your particular supplement needs, though as I mentioned, nearly everyone will benefit from these foundational nutrients. I’ve gone into more detail about many of these and other nutrients in my Broken Braindocuseries. You can learn more about this cutting-edge series here.

Wishing you health and happiness,

Mark Hyman, MD

Humor

I belong to an online community of Parkies and their care givers. It is a great source for information. [The Invigorated Community] I wanted to share a bit of their upbeat positivity with you. Yesterday, a person asked if others were experiencing brain fog. What follows is a short bit of the responses:

M… Yes, they list concentrating as a symptom. But I think it can get ‘mixed up’ with other symptoms such as depression. 
And the fact is we’re all getting older and that’s just a fact of life. 
Wait…..what was your question?

M… Sorry, I don’t mean to down play it. But, We do need to remember to keep a sense of humor.5M

D… yes we do for sure. I must say, in the morning when I am shaving I laughed, every time I move the razor, I get really bad tremors in left hand, and when I stop, the tremors stop. I have fun with it. 😂1M

M… It also saves the investment in an electric toothbrush.

D… a sense of humor is very important I think. Some really cool things are starting to happen, like a little bit of a drooling from the left hand side of my mouth when I am taalking… People ask me, are you okay? I say sure I’m feeling fine, seems like I have too much saliva, would you like some?😁

Ruby slippers and WBV

Today, I want to share information on two of the tools I use daily. Both were gifted to me by the #2 leader of my pack.. my twin sister, Cheryl. She is certified to provide a therapy called Zone Restoration. Since she lives in Idaho, and I live in Florida, she typed; “I can’t ZONE your feet… so the closest thing I know is Reflexology.” So she sent me Reflexology insoles. [I’ll post more about that later] I slipped the insoles into some red slippers I received this past Christmas and wear them every time I use my Whole Body Vibration machine.

After John & I moved to Florida, and I’d shared some of my quandry over my baffling symptoms, Cheryl surprised me with a WBV. I’d seen the literature and claims … and desired to test it. I went to youtube to learn how other people use theirs and learned that different benefits are associated with the variation of vibration speed. Lower speeds are best for exercise and higher speeds don’t give muscles time to react, but are great for stimulating the lymph system. I even found examples from giving yourself a facial to doing the Kegel exercise.

The recommendation is to not use it for more than 10 minutes at a time. When I did my first set [while John ( my #1 leader of the pack) was fixing our breakfast]… I did two sets of 20 deep squats & two sets of 20 high knee lifts, followed by approx 5 minutes of posture holds (the first two as taught in this youtube) 3 posture  For all of that, I have the vibrations set at about 12. Then I ramp up the vibrations up to 70 for the last two minutes to free up any sluggishness in my lymph system.

The first visit I had with my Movement Disorders specialiat, I came away with a referral to a speech therapist. There I learned about LSVT . I Had no idea how soft my voice had gotten, and learned a great deal from my visits. . https://parkinsonsdisease.net/living-with-pd/voice-exercises/

The next time I step onto my WBV with my red slippers, today, I will do my exercises I learned from my speech therapist. I like to multi-task so I decided to attempt to add a challenge to memorize what I am shouting. So I enlarged a copy of The Relief Society Declaration,and posted it on the mirror, so I can read it with my Prism glasses. [That is a story for another day.]

The Relief Society is the women’s organization formed by members of . . The Church of Jesus Christ of Latter-Day-Saints

Image result for the relief society declaration

After I have ‘Shout/recited’ the declaration, I proceed to do facial exercises to target my drooling and Parkinson’s Facial Mask. These are done at 12 on the WBV. Facial (improve drooling, chewing food) Then I crank it up to 70 for the last 2 or 3 minutes.

Whew!! It took me a lot longer than 20 minutes, to type how I use 20 minutes of my day for exercise

The Journey Has Begun…

 I can’t say with any certainty when it began. 

     As a member of the Church of Jesus Christ of Latter Day Saints, firm in the faith, I understood none of us are exempt from trials that will test us.  But I also knew many of our trials are a consequence of prior bad choices.  Because I was born with a strong healthy constitution and had a health conscious life style, complete with nutritional supplements, herbs & essential oils I felt like a candidate for one who could live to witness the second coming of Christ.

     John & I raised ten children of our own, and as circumstances permitted we were professional parents to numerous special needs young people, then for nearly 16 years we operated a licensed Family Group child care in our home.  We lived on an acre of land and had an amazing garden and all sorts of fruit trees and berries.  I felt like my life style afforded me all the exercise I needed.

In the spring of 2015, I noticed it was difficult to move around in the cherry tree while picking.  But when I climbed into the apple tree to string lights for our youngest daughter’s wedding reception in June of 2015… I knew my days of tree climbing were over.

      After moving to Lady Lake, I transitioned to a holistic Dr. stating I had lots of abnormal symptoms. None, by themselves were serious, but I wondered if together they might be indicative of a bigger problem? April 30th 2018, by process of elimination and observation, Dr.Kraucak determined my diagnosis to be Parkinson’s Disease. For me, having a name meant I no longer needed to wonder why I had such a soft voice and drooling, why my hands were so weak, while playing family games, I couldn’t hold cards to shuffle and my handwriting was so small and unintelligible. A name meant I now understood why I felt like my feet struggled to keep up with my head and I couldn’t balance enough to participate in a water exercise class, etc..

  It has taken NINE months since I received the name to target my research efforts… but now I am ready to begin to blog.

Welcome 

I am DELIGHTED to have you here. If you haven’t done so already, please browse the website to learn more.  I will try to make it easy for you, by linking my blog entries to the INDEX page,to facilitate your search for specific topics.  

Don’t forget to click on FOLLOW so you stay up to date on additional new content!

      I have already learned so much on this journey with Parkinson’s disease. I saw a blog called Parkinstand hosted by a lovely African lady seeking to locate other people of African ethnicity.  I was prompted to create a forum where people of my faith could share their experiences to strengthen one another.

I can’t wait to share all that, and more, with you!

Stay tuned.