On the bright side

So… I have to admit I was disappointed with how our trip to Gainsville went. Basically, the Doctor just wanted to put me on a medication that has bad side effects. When I said, no thank you, he said, “You can just be followed by your primary care doctor.”

So what we did accomplish… They have a base line for my symptoms,,, so If I return in the future, I am in the system. AND he also said, “I would change the diagnosis from Parkinson’s to Parkinsonism.” Because I have multiple symptoms, typical with Parkinson’s, but not the tremors.. plus other symptoms as seen in MSA. There is a test that could be given to determine what parts of the brain are losing the dopamine. But knowing wouldn’t change the treatment. And I don’t desire to have radioactive stuff injected into my veins, anyway.

DaTSCAN is a special technique that provides detailed images of the dopamine neurons (nerve cells) in the brain. The Food and Drug Administration (FDA) approved the use of DaTSCAN for differentiating PD from other conditions in 2011. The patient is given a radioactive agent into a vein.

I asked if I could speak with a dietician, because I am losing too much weight on the Keto Diet, but both dietician’s were in a meeting, so one is supposed to call me. (I’ve made a decision, without her call.) The thinking behind the Keto diet was to get more oil to my brain… and to increase my energy. Sadly, I do not recognize any pick up in my energy level… but when the scale said 107 Lb. this a.m., I decided to add more fruits, beans, etc… to balance my diet more. I’ll still have to say no to products with white flour or sugar, of course. Back to the matra of moderation in all things. I will also continue to focus on the gut health guidelines… Bone Broth, and fermented foods.

The bright side in my day came when I checked the mail. My Aware in Care kit had arrived. I’ll explain what that is, tomorrow.

My creamsicle breakfast

My Sweetheart prepares breakfast for me most every day.
Keto..avecado, bacon, egg & berries… with almond bread

You may observe the pile of nutritional supplements. What I have in the mug is what I call my orange creamsicle. My substitute for applesauce, which is generally considered the ‘go-to-medium’, for aiding a challenged person to swallow their pills, but is too high in sugars for the keto diet.

I start with 3/4 Cup Alkaline filtered water, add 25 drops of 35% food Grade Hydrogrn Peroxide and 16 drops of Amino Acids. Then I stir in two heaping teaspoons of a sugar free orange flavored fiber and add 1/4 C. heavy whipping cream. HONESTLY.. it tastes like a creamsicle. I then take my supplements quickly, because it thickens so quickly I have to finish it with a spoon.

On 9/14, I began the protocol for oxygen therapy.   I plan to re-evaluate around the end of April 2019.  

 

Who knew? Sauerkraut

John served as a missionary for the Church of Jesus Christ of Latter-Day-Saints in the North Central States Mission, from 1963 through 1965. While serving in Minnesota, he reports it seemed nearly every home, his nose was assaulted by the odiferous ‘rotting cabbage’ brewing in a crock behind their wood burning stoves. He had no intentions of ever inserting such a vile concoction into his mouth.

Wikipedia describes it: “Sauerkraut is finely cut raw cabbage that has been fermented by various lactic acid bacteria. It has a long shelf life and a distinctive sour flavor, both of which result from the lactic acid formed when the bacteria ferment the sugars in the cabbage leaves.” 1 Cup = 6 carbs

Healthline states “Due to the fermentation it undergoes, sauerkraut offers nutrition and health benefits far beyond those of fresh cabbage. Sauerkraut fermentation creates conditions that promote the growth of beneficial probiotics. Probiotics are bacteria that provide powerful health benefits. They also help make foods more digestible, which increases your gut’s ability to absorb the vitamins and minerals they contain.”

From 1965 to 2016, John held firm. But not all sauerkrauts are created equal. After we moved To Florida, John enrolled in a nutritional education program through the VA called… TeleMove. His weight had crept up to 232 pounds. We learned to count calories and worked on portion control and experimented with different foods. John was so committed to follow the guidelines, he finally tasted Bubbas Sauerkraut (found in the refrigerated section at Publix)… and began adding it to his salads, enabling him to cut down on salad dressings’ And he got his weight down to 184 pounds!

Since I began my Journey, my friend Peggy Norwick told me “It is really simple to make your own sauerkraut and it is so yummy.” She was right!

John processes a head of cabbage through our Bosh grater, so it is nice and fine (for those of us with chewing issues). I put the grated cabbage into a crock (you can use a glass bowl).

The only other ingredient we add is 1 Tblsp SEA salt. The other critical element of the process is to cover the cabbage with a plate or lid and add weight. (I use a half gal. juice bottle filled with water for my weight.) After stiring in the salt, the cabbage will break down creating enough juice, the cabbage is all submerged.

I then drape a dishtowel over and around the bottle weight and crock to avod drawing fruit flies and leave it sitting close to the stove. Three or four days is all it takes. When the desired flavor is achieved.. store in the refrigerator to slow fermentation.

Beef Knuckles

We discovered a meat market close to us where I was able to obtain beef bones. I again went to the internet to learn what secrets it held and found a most informative site for my bone broth 101 education. I have cut and pasted some pertinent information. (great insites not included with my chicken broth recipie)

https://blog.kettleandfire.com/organic-bone-broth-recipes/                     “Bone broth is gluten-free, paleo friendly, and very good for you. It’s super simple to make but it takes time. Simmering the bones for 12-24 hours allows the release of many healing compounds: collagen (in a more digestible form called gelatine), glutamine, glycine, proline, and minerals. These nutrients are what makes bone broth so unique. It’s one of the best foods for a healthy gut, helps prevent leaky gut syndrome, improve your joint health, boost your immune system, get a better night’s sleep and even reduce cellulite and make your hair shiny and strong.  If you want to learn more, I recommend this ultimate guide to everything bone broth. “

From -101/ “One of the key differences between bone broth and regular beef or chicken stock is the long cook time. But there’s an extra ingredient and key step that takes bone broth to the next level, leaching every bit of goodness out of your bones and making your broth much more nutrient-dense.

That extra ingredient is raw apple cider vinegar (ACV). And the extra step is waiting to turn the fire on.

Even though a big batch of broth only requires a small amount of this sweet and sour ingredient (between 1 tablespoon and 1/4 cup, depending on the size of your pot), ACV plays a vital role in jump-starting the breakdown of the bones in your broth. The acid content, along with the live enzymes found inside start the process of leaching nutrients from the bones into the broth before you even start cooking.

After you’ve placed your bones in your pot, pour the ACV in, then fill your pot with cold water. Then you’ll leave your pot off of the heat for at least 30 minutes. Leaving your stock pot away from heat for that 30 minutes (or even longer) prevents the heat from killing off the live cultures and enzymes in the ACV before they can do their good work. From there, add your veggies and a bit of sea salt, turn on the heat, and let it cook.”

” Once your broth is ready for sipping or using as a base for soup, you’ll need to strain it. We recommend using a fine mesh strainer and storing your broth in 3-cup mason jars. Allow your broth to cool to room temperature before you put it in the fridge or freezer. Your broth will be good in the refrigerator for a week or so, and will last in the freezer for months (although we bet you won’t need that long to drink it up). “

Tomorrow, I plan to educate you on boxing … thus my reference to knuckles.  🙂

 

Sparked by a conversation

As I visited with a couple of my friends while we ate lunch (in the temple lunchroom) yesterday, we were talking about my blog and health in general. A question came up: What supplements do you take?

“Funny you should ask”, I said. “I can’t hardly find time to put something on the blog, for researching other sites I find. Last night I found an eight part series by Dr. Mark Hyman about FUNCTIONAL Medicine. I was very impressed with how well he presented the concepts.’

I also found (and included excerpts from) an article where he listed the nutritional supplements he feels are most important.

I recommend everyone view at least #1 of the Dr.’s series, if you have, or know anyone with a ‘diagnosis’ of ADD, anxiety, depression, OCD, bi-bolar disorders, etc… https://brokenbrain.com/01-epidemic/

I already consume the supplements in his primary list.. AND I do not remember him mentioning the #1 medicine for Parkinson’s Consider intense exercise as your most important daily medicine.

These are excerpts from the article Written byMARK HYMAN, MD

Here’s How to Heal Our Broken Brains with Nutrients

What leads to a broken brain? Most of us never learn how to manage our energy and bodies. Instead, we use drugs like sugar, caffeine, and alcohol to self-medicate and manage our energy and moods. We don’t connect our behaviors and choices with how we feel.

The key insight is that your brain is an organ that’s connected to everything else happening in your body. Fixing your brain starts with fixing your body: optimizing all the inputs and taking out the bad influences. The brain is resilient and can recover and heal when given the right conditions. ……(see article)……………………Even if you do all those things correctly, you might not be getting the right amount of certain nutrients that support your brain and body. That’s where supplements come in.

Think of nutrients as fertilizer for your brain. These little helpers improve communication and connections. ………………………………… Here’s how I approach optimizing nutrient support.

Start with the Basics

These nutrients are foundational supplements that cover the bases you might not—probably aren’t—getting from food. They feed your body and feed your brain. I put nearly all my patients on these supplements.

When choosing supplements, you should absolutely choose quality products. Not all supplements are created equal, and the wrong supplements—those with things like potentially reactive fillers or inferior forms of nutrients—can create more harm than good.

Fortunately, even among professional brands, none of these supplements are expensive. These are the foundational supplements that I recommend everyone take:

  1.  A high-quality, high-potency, highly bioavailable, broad-spectrum multivitamin/mineral. This contains optimal amounts of the full range of vitamins and minerals in their correct forms. You will probably need to take 2 – 6 or more capsules (depending on the manufacturer’s recommended dose).
  2.  Extra magnesium. Research shows about 75 percent of us are deficient in this calming mineral that plays a part in over 300 enzymatic reactions in our bodies. Take 200 – 400 mg of magnesium citrate or glycinate before bed in addition to what is in your multi. This relaxes the nervous system and muscles while calming your brain.
  3.  Extra vitamin D3. Because so many of us work indoors all day, more than 80 percent of the US population has insufficient levels of vitamin D, which our bodies synthesize from sunlight. Research shows vitamin D deficiencies contribute to a wide range of problems including dementia. Ask your doctor for a vitamin D test and if your levels are low, work with him or her to optimize them.
  4.  Omega-3 fatty acids. Our brains are nearly 60 percent fat, so it should be no surprise that not getting sufficient dietary fat can adversely impact this organ. Chief among those fatty acids for your brain are eicosapentaenoic acid (EPA) and docosahexaenoic acid (DHA). These omega-3 fatty acids are critical for supporting brain function and mood, regulating metabolism, and preventing diabetes and inflammation. Most of us need more than our food delivers, which is why I recommend a high-quality supplement. 

  5.  Special methylation factors like folate, B6, and B12. Methylation is a key biochemical process essential for the proper function of almost all of your body’s systems. It occurs billions of times every second; it helps repair your DNA on a daily basis; it controls homocysteine (an unhealthy compound that can damage blood vessels); it helps recycle molecules needed for detoxification; and it helps maintain mood and keep inflammation in check. To keep methylation running smoothly you need optimal levels of these B vitamins. Without enough B vitamins methylation breaks down, and the results can be catastrophic. Your multi will contain some B vitamins, but I find many patients do well taking an additional B-complex multivitamin.
  6.  Probiotics. These beneficial bacteria can improve your digestion, reduce food allergies, and reduce gut inflammation. Gut health plays a powerful role in brain health. When you don’t have the right gut diversity, inflammation and things like leaky brain can occur, setting the stage for diverse problems ranging from brain fog to dementia.

Going Deeper with Supplements

I frequently use other supplements beyond these foundational nutrients to address specific brain conditions. (See the entire article at this link) https://drhyman.com/blog/2018/01/16/heres-heal-broken-brains-nutrients/

  1. Glutathione precursors. Glutathione is your body’s master antioxidant that also recycles other antioxidants, which are critical for cleaning up free radicals. When left unchecked, these free radicals lead to massive cell destruction (including brain cells). A great way to get glutathione is with a lot of cruciferous rich vegetables such as broccoli and collards. Various supplements including lipoic acid, N-acetyl-cysteine, and quality grass-fed whey protein all serve as precursors to help your body make glutathione.
  2. Support your mitochondria. These little power plants in nearly all your cells fuel your brain and body. Nutritional deficiencies, low levels of antioxidants, exposure to toxins, allergens, infections, and stress can all damage your mitochondria. “If your mitochondria are not working very well, then that organ doesn’t work very well. In the brain, that means that you begin to have problems with fatigue, pain, irritability, and cognitive decline,” says Dr. Terry Wahls in our Broken Brain interview. Nutrients you can use to optimize mitochondria include L-carnitine, NADH, lipoic acid, and coenzyme Q10. When you don’t get enough of these nutrients, your mitochondria have a much more difficult time producing energy, compounding the problems they face from the onslaught of ever more free radicals. Your brain cells fire more slowly, your metabolism slows, and your ability to process toxins shuts down.
  3. Try calming nutrients. Mood disorders like anxiety and depression are at epic levels today. Fortunately, we have a wide array of supplement options to address these brain conditions. GABA (gamma-aminobutyric acid) is a nutrient that calms the brain from too much of the neurotransmitters epinephrine and norepinephrine. It is like a brake on overstimulation in the brain. When you have low levels of GABA, it is harder for you to relax after your body has released these excitatory neurotransmitters. Other supplements that can improve conditions like depression and anxiety include L-theanine (an amino acid in green tea), 5-hydroxytryptophan (5-HTP), inositol (usually found as a powder), and herbs like Rhodiola rosea.

I recommend working with a Functional Medicine practitioner to address your particular supplement needs, though as I mentioned, nearly everyone will benefit from these foundational nutrients. I’ve gone into more detail about many of these and other nutrients in my Broken Braindocuseries. You can learn more about this cutting-edge series here.

Wishing you health and happiness,

Mark Hyman, MD

Keto BBQ Sauce

Low Carb & Sugar free

INGREDIENTS

  • 1 CUP CANNED TOMATOE SAUCE OR PUREE (8-9 OZ)]
  • 1/3 C. APPLE CIDER VINEGAR
  • 2 HEAPING TBLSP. PYURE (organic stevia blend)
  • 2 TBLSP. WORCESTERSHIRE SAUCE
  • 1 TBLSP PAPRIKA
  • 1 1/2 TEASP GARLIC POWDER
  • 1/2 TEASP ONION POWDER
  • 1/2 TEASP SEA SALT
  • 1/8 TO 1/4 TEASP. GROUND CAYENNE
  • 2 TEASP. SPICY BROWN MUSTARD

INSTRUCTIONS

1.) Combine all ingredients, stirring together as you bring to a boil over medium-high heat.

2.) Simmer , stirring frequently, for approx. 15 minutes till reaches desired thickness.

NUTRITION NOTES

2.5 net carbs per serving (2 tablespoons of sauce)

Bone Broth

     From the GAPS diet I see the benefits of bone broth and sauerkraut. Fermented asparagus, pickled yellow peppers, green olives, etc… which can both be incorporated in the  Keto-Alkaline Diet. which suggests the Alkaline Elixir recipe: six ounces of water, 1 teaspoon Bragg’s Apple cider vinegar, 1 teaspoon Lemon juice, and 1/4 teaspoon baking soda.

Quite some time ago.. maybe ten years ago, I took John to a NUCCA Chiropractor in Salt Lake City and John’s body responded fantastic results. When I began my research to learn about Parkinson’s I looked to learn from professionals we had previously benefited from, THUS I sought advice from Dr. Jack Stockwell. He told me about the gut brain connection. (see podcast link)   . Dr. Jack Stockwell on Gut Health

Jack & his wife, Mary, do the podcasts together. What follows is the instructions Mary provided, telling us how she makes her bone broth. It is so contrary to the way I had cooked. I always skinned the chicken, trimmed off the fat. and when boiling a chicken, I’d refrigerate it and then discard the fat which had solidified. Now, I boil it all…and sort out all the skin, fat, cartilage & ligaments to blend in my Vitamix and then restore to the broth.

I soak my raw chicken in water with 1/2 c vinegar for an hour. Then I drain it and follow ‘Mary’s Directions’

“…………..Add an onion, a generous amount of garlic, 1 Tblsp Sea Salt & ground peppercorns to the chicken and enough filtered/distilled water to cover the chicken. Bring it to a boil. Continue to simmer 2 to 2.5 hours or until the chicken isn’t pink anymore.

Remove the chicken & bones to a separate bowl, and strain the stock to remove small bones and peppercorns and put stock back into the cooking pot.

Separate the chicken meat from the bones and set aside.

Remove all the soft tissues from the bones as best as you can to a separate plate. Soft tissues is basically anything “soft” that could be blended. i.e., skin, ligaments, cartilage, etc. Also cooking the gelatinous soft pieces for a longer cooking period will cause them to completely melt. Take care you do not include any pieces of bone or hard pieces as you will cause the texture to become grainy which can be unpalatable. Then blend up these soft pieces and add them back to the soup__it will make it creamy looking.

If you did not get the chicken cut uo by the butcher, now is the time to remove bone marrow from bones while they are warm. For chicken bones this would be accomplishedby cracking open the leg bones and thigh bones with pliers. If they are cooked long enouh, they will simply snap in your fingers, or crumble.

Put the broken chicken bones with the exposed marrow back into the filtered broth. Add a little vinegar and cook awhile longer to leach out all the minerals and nutrients.

Strain this broth with a fine sieve. Add the meat back in and warm up to a good soup temperature and enjoy! If you would like to add vegetables __ when you are on full GAPS diet__do it in the last half hour of cooking. /cook them until they are very soft”

[Sue typing now] I like to divide the broth into pint jars and put lids on them, before refrigerating. And since I am on the Keto diet and I can get away with it, I add a Tblsp. of butter to each pint… all ready to warm up to have whenever I choose. Yum.

Favorite Keto Recipe … Almond Bread

Almond Bread.. Dairy free, gluten free, grain free, sugar free… low carb

Ingredients… I combine in my Vitamix 3 Cups Almonds…. (raw, unsalted) 3 Cups water… (preferably filtered) 6 Egg yolks… (save the whites; you will whip them and fold in for lightness) 1/2 Cup coconut oil

Whip… the 6 Egg whites… (till forms peaks) [in a Large metal or glass bowl] Combine and fold into egg whites: 1/4 Cup Chia seeds . 1/4 Cup Psyllium husk . 4 tsp baking powder . 1 tsp salt (or to taste)

Pour almond mixture onto egg white mixture and FOLD together.

Pour into 5 or 6 small loaf pans… or two large loaf tins… . lined with parchment paper Bake at 350F for approx. an hour.. depending on loaf sizes. Till toothpick comes out clean. It appears some ovens require a longer cooking time, so please be guided by your oven.

Tools I Use

When I started the Keto diet, I used the chronometer app to aid me in my meal planning. But I wondered how I could tell when I was in Ketosis. You can pay a lot for a breathalizer… but I found one on line through the HouseofKeto. It gives me the peace of mind, to know I haven’t errored and fallen out of Ketosis.

When I chose to refine my diet a little, to the Keto-Alkaline diet, I ordered Keto-ph Urine Reagent Strips through Dr. Anna Cabeca’s website.

For the Keto diet, I created a yummy bread recipie. I had a 50 lb. supply of almonds in my food storage, but processing through my wheat grinder just gummed it up. I had a really good blender..(I thought) But I burned up the motor while making the third batch of Almond bread. So I now have a powerful Vitamix processor. [I’ll share the recipe in another post]

I have found when I get up in the night to relieve myself, I am stiff enough that sitting was more like falling on. A Raised Toilet Seat has simplified my task and improved my comfort.

We now have an Infrared Sauna in our shed behind the home. [I am so glad we live in Florida] I cut & paste from a web site… . https://clinicaltrials.gov/ct2/show/NCT00674895

“Observations from our research studies indicate that, far infrared rays provide energy to the body, improve the autonomic functions of the nervous system, restore the functions of the endocrine system, strengthen the immune system, improve blood circulation and increase the level of oxygen in the cells and promote the regeneration of muscle cells, nerves and brain cells.

It is hereby postulated that irradiation using far infrared, with wavelength between 5 to 20 microns, of the central nervous system, the endocrine system and the whole body could prevent, control, manage or possibly lead to complete rehabilitation of people who have Parkinson’s Disease

…………………………………………………………..”

My exercise aids consist of a Whole Body Vibration machine. [I’ll share benefits and my routine in a future post} Online exercise videos w/ walking sticks, 2 lb weights and a ball. And I am now the proud user of a tandem bicycle / Rhoades Car. Since it has a solar powered power assist, my riding partners don’t get worn out trying to get up the little hills. [Chris, the owner of the company, is an honorary member of my Wolfpack, He sends his support, offering a 25% discount to anyone purchasing a Rhoades Car if they give him my name… Sue Rosier or code #1084] What follows is from his Blog:


Special Needs & Rhoades Car


Don’t you love it when you create something and it ends up providing a new solution in addition to what you originally created it for?  Or when you finish a project and you look back and see how rewarding it was to see the fruit it produced?  As we’ve seen Rhoades Car move into different markets and offer a healthier lifestyle to individuals, families, and work-style to corporations, we’ve also seen how it can help and increase a positive outlook on life with young and old individuals with all different types of special needs.  It’s the most rewarding feeling when you get to hear from family members or parents of how a Rhoades Car has or could really help their special needs family member either get outdoors more and/or feel like they’re actually contributing to an activity with others.

With four wheels, two seats, and the open road, everyone can enjoy it.  It shouldn’t matter if you have something physically holding you back, you deserve some excitement and enjoyment on the road.  Rhoades Cars have a unique experience that allow you to ride on a stable quadricycle, sit on a comfortable seat, and either participate in the pedaling or not, it’s totally up to you.  Rhoades Cars also can be customized the person’s special needs to help them better enjoy and participate.  We recently had a customer request to have foot straps on the passenger’s right side as well as a seat belt.  This particular customer’s wife had had a stroke and they were both eager to get back out together and exercise.  Since they were both once avid cyclists, this was the best way for them to get back to an activity they enjoyed and could do it together.  That’s where we love to be able to customize is when a customer has a specific need, we have a specific answer.

As we’ve noted in a recent blog, one very important advantage Rhoades Cars have is the side-by-side seating.  Much different than a tandem experience, with our recumbent seating style, you really get to sit comfortably while engaging in communication with the person next to you.  It’s very similar to a vehicle so it combines the cycling experience of pedals with the seating experience of a car.

A few weeks ago we shipped a custom-made Rhoades Car to a developmental achievement center which specializes in helping adults with disabilities become as independent as possible.  This particle model had a specialized trailer on it with stable foot plates (and foot straps),a swivel seat, and a seat belt.  Since some of their adults could not participate in the cycling aspect, this allows them to go on the ride with others and still be able to enjoy the outdoors with everyone else in a stable and comfortable manner.  The trailer was specifically for someone to enjoy a ride outdoors and be able to take in the sights and sounds of nature during a ride.  We also have customers who suffer from diseases such as Alzheimer’s and Parkinson’s, where their Rhoades Car has tremendously changed not only their outlook on life, but in some ways increased their quality of living.

Rhoades Car’s owner, Chris Spann, has a special place in his heart for helping those with special needs or physical illness.  The former owner, William suffered a brain-stem stroke in December of 2006.  “If I could have had a Rhoades Car during my recovery, to enjoy time with my wife and kids, it would have been a game-changer.”  This was a strong feeling that contributed to Mr. Horton’s drive behind purchasing the company in 2015.  That same feeling and want to help those who may be suffering from various hardships, continues through Rhoades Cars today.

We have numerous customers and inquiries every week from parents who are interested in providing a better atmosphere for their kids.  From autistic to blind or vision-impaired to down syndrome, a Rhoades Car allows them to participate in a healthy and fun cycling exercise and depending on their level of engagement, can actually pedal or steer the bike.  Nothing else allows them the freedom to enjoy time with others outdoors AND get a great exercise.

We love hearing these stories from our customers.  We realize what we get to do is make a product that not only brings joy to so many for being able to be just like everyone else, but it brings back a simple pleasure that so many of us take for granted everyday, which is being able to enjoy being around the people we enjoy and love the most.  Whether it’s a family member with special needs or someone who has suffered from a life-altering disease or illness, we enjoy providing a customized product that helps fight against the mental and physical hardships that come with special needs and disabilities.  Here at Rhoades Car we consider it a privilege to partner with families and individuals to help bring smiles and joy to everyone, no matter what life throws at them.