I transferred to another neurologist, on March 31st. When I handed the office person the requested DatScan & MRI summaries, reports from previous physicians, and lab results, I included a few extra, unsolicited pieces of information. She punched holes in everything to place in a binder. I did not notice until we were back home… I failed to give him my cover letter! It was still folded in my appointment calendar.
I’ve been elated with the results. At my last visit with my NO LONGER neurologist visit, he had me on three different medications and said he could tell I was under medicated, because I still had the Parkinson’s Mask. My new neurologist suggested I try… “Instead of eating a cracker with the Carb/Levo why don’t you try taking it with 8 oz of water 1/2 hour after you eat?” And he took me off of two medications the previous Dr. had put me on… but, he wrote a script for Amantadine, which is an antiviral drug used for preventing or treating people with the flu and is also a dopamine promoter, saying, “It may help with your drooling. Take one tomorrow, and let me know how it made you feel when I see you on Wednesday.”
When I went for the nerve conduction testing on Wednesday, I handed Dr. Choudhry my Cover page with details of my experience added at the bottom of the page. He told us not everything is related to Parkinson’s and he thought what I was experiencing was neuropathy. (he had also requested some blood work, looking for signs of diabetes.) He was surprised to learn I had very little loss of nerve conduction. I will most likely hand him a paper including links addressing foot dystonia and Parkinson’s patients, the next time we meet.
John told me, he observed Dr Choudhry use a hole punch and place the cover letter in the folder. I heard the doctor tell John, “She makes very good notes. They are very helpful.” So, are you wondering what I thought of the Amantadine?
I noticed at two hours after I swallowed the capsule, I was still drooling, But then twelve hours after, I was drooling again. But the most significant to me was the energy! After so many months of dragging myself from seat to seat, I had energy! I’d weeded, helped move some lumber, watered the garden and drug hoses from front yard to the back, yet, when I went into the house, I didn’t collapse into my chair feeling utter exhaustion! Instead, I prepared dinner for the seven of us.
The doctor asked me to take two a day. I have followed his directives and I have not been disappointed. I have weeded each morning. (The flower bed had been very neglected.) I have been up and doing things all day! I sure hope this honeymoon doesn’t get over for a long time.
I have looked at the possible side effects… none of them have bothered me, so far. But I found a note from the wife of a Parkinson’s patient, saying she had to discontinue it, because he lost his inhibitions. For an example: When they went out to eat, he would take slices of salami from the salad bar and put them in his pockets. She found the greasy remnants in his pockets when doing his laundry.
I am so grateful for the blessings I am experiencing during this journey. Yesterday, with the aid of two grand children, we completed weaving another plastic sleeping mats, while listening to Conference. Today, I think I have pretty well followed the law of the Sabbath… and done nothing, but listen to uplifting words. My goal for this week is to finish weeding the flower beds and work in the garden.