How to breath

I did not look for sources for the data… but interesting concepts here:

The link to the complete article by Jennifer Chase is included at the bottom of this post:

What if I told you oxygen alone was the main ingredient to a more energetic, vital, vibrant physique? What if I told you proper breathing could transform your core state of health and you’ve probably been doing it wrong this whole time?

Every single day your body burns off somewhere near 700 billion dead cells. That’s right. 700 BILLION old cells. BILLION! With a B! PER DAY!

Believe it or not, breathing is our body’s main source of detox. When we are not accustomed to sufficient breathing, these toxic, dead cells linger in our bodies without an efficient way out. …….

The definition of food is essentially anything your body takes in to maintain life and growth, therefore oxygen is an essential food to your entire organic structure. Most of us suffer from what is called “futile breathing,” which translates to us getting about 1/4 to 1/5 of the oxygen our lungs were designed to hold. This becomes detrimental to the whole system. A system which requires our cells to be fully oxygenated in order to process food properly and give us the energy we need to sustain a comfortable quality of life.

The capacity at which you breathe is a direct mirror to how efficient your entire body is performing. Meaning, if you are only inhaling 1/4 of your lungs air capacity, your body is only functioning at twenty-five percent of it’s innate amplitude. Twenty-five percent! That’s it! As a result, your body begins to betray you in a number of ways: Your energy levels decrease, your body begins to fill out in places you’d rather it didn’t and your immune system suppresses leaving you vulnerable to illness.

Breathing correctly actually changes your body chemistry. Your cells have two modes…..

…. In case you didn’t know, the lungs are your body’s primary excretory organ for releasing weight. Eighty percent of weight loss occurs when fat is converted into carbon and released through the lungs. The other twenty percent is what we release through sweat, urine and feces combined.

Another important function of the body that suffers due to lack of oxygen, is your digestive system. When your cells are starved for air, they are inefficient in delivering nutrients, amino acids and vitamins to their proper destination. This is why some of us always feel hungry no matter how much food we consume.

The majority of us tend to breathe into our chests. When we do this, we are releasing adrenaline into our system which consequently slows down our digestion. By breathing directly into our bellies, our nervous system goes off-alert allowing our muscles to relax, our immune system to function and our digestion to regulate.

……. Here are a few breathing exercises to get started with:

1x4x2 breath: This one was created by Tony Robbins when he was overweight, in his 20’s, after picking the brains of several successful weight loss subjects to find out what their permanent weight-loss methods all had in common. Can you guess? Oxygen. It starts with counting how many seconds it takes you to inhale to your lungs full capacity, then holding your breath for that number x4. And lastly, exhaling x2. So if it takes you 3 seconds to fill your lungs with air, it would be 3 seconds in, hold for 12 seconds, release for 6 seconds. Do 10 of these 3 times a day for best results.

Slow and steady: This one is pretty self-explanatory. Do this laying down preferably, and relax. Slowly inhale deep into your belly and allow it to fill with air, while then expanding into your chest as you inhale as fully as possible. Then slowly release.

Alternate nostrils: Breathe into one nostril deep into the diaphragm while holding the other closed. Hold for 5 seconds, switch finger to the other nostril, holding it closed and exhale out the other.

There are tons of exercises out there, give them a try! ………….


https://medium.com/@jenniferchase_45595/transform-your-metabolism-with-oxygen-cebbb4c1f6c1

Ketosis

After I read that “evidence has been accumulating showing that a ketogenic diet might have a therapeutic role in different neurological conditions. And that “Experimental models have shown that a restriction in glucose intake bolsters resistance of the cells located in the substantia nigra against neurotoxic effects of MPTP and prevents the progression of symptoms associated with PD

(In case you wondered, as I did… what is mpdp?) “Although many toxins and neurological insults that damage the basal ganglia and/or the substantia nigra result in neurological disorders which include parkinsonian features (see below), one toxin, 1-methyl-4-phenyl-1,2,3,6-tetrahydropyridine (MPTP), appears to target relatively specifically those neurons that are involved in Parkinson’s disease.”

I asked my primary care doctor how he felt about my trying the Keto Diet.

He gave me the go ahead, to try it. I was concerned that it might make me loose weight. I was at 116 lbs. He didn’t think it would affect me that way.

I went into Ketosis Aug 24th… where I remained for eight months. I’d lost 9 pounds. I decided to not follow the diet so closely, and began adding some potatoes and bread, etc.. following the mantra, moderation in all things.

On May 11th, I no longer tested to be in ketosis. I consider it prudent to avoid white sugar & white flour and to eat at least 50% raw fruits & vegetables. And for gut health, I’ll continue to eat more fermented foods.

My results from following the Keto diet are inconclusive. Perhaps it slowed progression… but it definitely isn’t a cure all…. for me.

Every Victory Counts

 You may want to go online to Davis Phinney Foundation for Parkinson’s and request the free manual ‘Every Victory Counts’ It is excellent and will greatly benefit anyone reading it. It is 400 pages long.  from Mr. Phinney’s intro:
“This race, a no-holds-barred winner-take-all type of event, demands everything from me. Let down my guard, and it’ll knock me flat – but by refusing to give in, by exercising daily, by eating well and most especially, by maintaining a positive attitude – I find ways to win.”

I’ve been browsing through posts on MyParkinsonsTeam.. an on line support group and social network. I have cut and pasted a few of the comments regarding attitude and patience that I found insightful.

ATTITUDE

“Good morning. I truly believe the best thing to do with the memory loss problem is to lighten up. All my friends and family know what to expect from my pd, so they are very patient with me. If I forget a word, I just call it “thingamagic” and go on with the conversation. I am bilingual, so if I recall the word in the other language, I’ll use it. Even my grandkids, who love to sit and talk with me, when I forget their names and call them “little girl”, they just say their name and go on like nothing happened. I am not trying to make light of anyone’s condition, but remember, it’s half illness, half attitude. The more you stress, the harder it gets. Have a blessed day. “

………………………….

“I read a lot , and I volunteer doing a computer job in which I have to keep my brain running normal . If you don’t use it you’ll loose it.”

………………………….

“I sometimes loose words but probably as often as any other 63 yr. old. What frustrates me is when I’m told by family and friends “ I just told you about that” or “ You already told me that”. I have a fairly high IQ so the loss of my short term memory really irks me. “

………………………..

“I just say,”uh oh Parkinson moment” and people accept that if you treat it as “Oh Well..”

……………………….

‘The only other answer for caregivers whose spouse/patient is experiencing this is patience. There are days that I don’t know how many times in 1 day the thought runs through my brain “It’s the disease not him.” That is what you have to constantly remember.’

………………………

“If you’re the person with the ‘memory fog’ then you don’t know what you’ve forgotten – that’s the scary part. I’m listening to Peter Gabriel ‘Don’t give up’ https://youtu.be/VjEq-r2agqc this gives me encouragement and a clue – learn a new song, learn all the words, sing along – learning something new utilizes the brain’s inherent abilities, and will sustain memory function … learn a new sequence of numbers (someones phone number! “

Positive over negative

I’ve been browsing through posts on MyParkinsonsTeam.. an on line support group and social network. I have cut and pasted a few of the positive comments that I found refreshing.

“For every problem the is some possible solution and for every negative there is a positive side…..always remember you are in control because only you can decide how to respond back…. remember too: NO PD or any disease can ever take that away from you! Do not let fear get in the way, do what you want to do now….I used to put off doing things because I felt they were too expensive, or I would want until I could find a better deal or wait until I am older and have more time—…NOT anymore, I got my priorities straightened out now and for that I thank God! I know for me, often I have to be down and out, and have fallen, which I often physical do -do-fall-just to see and remember to look up and see all I do have, and how blessed I truly am and that no PD nor any disease can take this away from me! 🙂 “

………………………..

“At the time the kids were 6 & 8 years old and it was kind of hard for them to understand, Now at ages 21 & 23 they have gotten something positive out Parkinson’s; How to care for people and lend a hand when someone needs help.  The other Positive thing it had on my life was it showed me how strong I am.  This is a Disease that I refuse to give in to.”

……………………… 

“Research for yourself to know about this and tell the Doctors, Because they learn from us also. Most of all,]I know it’s hard When living each day, Don’t make this Disease take all of all your life. I try to keep it in the farthest part of my brain and not have it in the front to were it’s who I am. I don’t wake up and say I have Parkinson’s and go thru my day and talk about it, I use to and would take me down and people pushed away. My kids say to me your amazing you never stop, Doing stuff. Get a hobby, I play Guitar at night and paint on canvas to relax and keep my movement going, Remember a body at rest, Stays at rest. Fight this Demon as much as you can and show who’s the Boss.”

AND I liked this next blog post from ‘My Super Power’

Anxiety is not always Negative  PARKINSONS- MY SUPER POWER·FRIDAY, MAY 10, 2019  This past week I attended a Parkinson’s meeting that was about “ Understanding Mental Health Complexities of Parkinson’s”.  Of course that wonderful mind of mine got into overdrive as I listened to the guest speaker talk about Anxiety, Apathy, and of course Depression. It all started with Anxiety. Sticking with previous articles and statements I have posted, that the human mind can think of 300 to 1000 words a minute and that 65% of these are negative, it seems the medical experts are no different in how they provide us with information.  How they present or say things to us usually make us think in the negative as well.

When I was first diagnosed my Neurologist suggested that medicine might improve my Quality of Life. When I asked him what was wrong with my quality of life at that time. He did not have an answer. Just that he thought the meds might be of help. However he did not know for sure. Yet that one thought, being implanted in my brain, could have caused me to doubt myself.  Anxiety , seems to be always shown as a negative. However Anxiety is just a means of how we respond and deal with stress. Stress can be caused by good or bad events that have or will happen to us. We can be just as stressed out on good things in our lives, as we can be about bad things!  Remember as children how excited and anxious we would be for Christmas and what Santa Claus would be bringing to us. That good anxiety would affect our sleep patterns and mood.  Looking forward to good things that are going to happen to us in the future IS ANXIETY! The reality however to us Parkies, is that our tremors or other Parkinson nuances don’t differentiate between the good or bad stress. Stress is stress and whether we are excited or not, our Parkinson’s will kick in. When that happens we start to over think. That overthinking can snow ball. It can create doubt. That doubt can lead to Apathy, and that Apathy can lead to Depression. Understanding that good stress can still activate our Parkinson’s however can be some what liberating to a degree and stop us from overthinking.  Any knowledge we can get of our opponent (Parkinson’s) can only help us in our battle. However being Positive over Negative while doing so, seems to me, to be Paramount!

Multiple System Atrophy (MSA)

Today, I discovered the European Parkinson’s Disease Association (EPDA) which is the only European Parkinson’s umbrella organization. They have been championing and working with the global Parkinson’s community for 27 years. They provide information and resources to all Parkinson’s stakeholders in Europe and raising awareness of the disease’s complexities and impact. Their vision is to enable all people with Parkinson’s to live a full life, while supporting the search for a cure.

Parkinsonism is the umbrella term given to a group of conditions that feature Parkinson’s-type symptoms: slowness of movement (bradykinesia), tremor and stiffness of muscles. About 85% of people with parkinsonism have Parkinson’s (sometimes called idiopathic Parkinson’s), which is the most common form. The other 15% of people with parkinsonism have other, rarer conditions.

The EBDA site has links which detail specifics of the other 15%:
Corticobasal Degeneration (CBD), Dementia with Lewy Bodies (DLB),
drug-induced parkinsonism, Essential Tremor (ET), Progressive supranuclear palsy (PSP), Vascular (Arteriosclerotic) parkinsonism & (MSA)…which I have cut and pasted below.

Multiple System Atrophy (MSA) is a progressive neurological illness (an illness of the nervous system). It is caused by an overproduction of a protein in the brain called alpha synuclein which causes degeneration (atrophy) of nerve cells in several areas of the brain (multiple systems). The three main areas affected are the basal ganglia, the cerebellum and the brain stem. This cell loss can result in a number of problems, particularly related to movement, balance and other autonomic (unconscious) body functions (such as bladder function). These symptoms are very similar to Parkinson’s, but MSA progresses faster and does not respond as well to medication.

What causes MSA?

Both men and women can be affected by MSA. It usually starts between the ages of 30 and 60 years, although it can also affect older people. MSA is not infectious nor contagious.

At present the cause is unknown and MSA seems to occur randomly. It does not appear to be inherited, although it may be that some people are genetically more predisposed to developing it. What triggers the process of atrophy is the subject of ongoing research.

Symptoms

Symptoms vary according to which part of the brain is affected by loss of nerve cells. Not everyone will experience all symptoms. Deterioration is very individual. Some of the most common symptoms include:

  • slowed movements
  • rigidity or stiffness
  • difficulty turning in bed
  • difficulty in initiating a movement
  • difficulty writing; writing may become small and spidery
  • loss of balance and poor coordination or clumsiness (ataxia)
  • speech difficulties
  • difficulty with fine motor skills such as doing up buttons
  • problems with erection or male impotence
  • loss of bladder control, including urgency, frequent urination or incomplete emptying, often getting up several times at night to pass urine
  • bowel problems, including constipation
  • inability to sweat
  • cold hands and feet
  • drop in blood pressure when standing (postural hypotension), leading to dizziness, fainting or blurred vision
  • coat hanger pain’ (pain in neck or shoulders) as a result of low blood pressure
  • problems with swallowing
  • emotions that are easily aroused or tend to change quickly
  • depression, anxiety or a feeling of being overwhelmed
  • soft voice, particularly when tired
  • restless sleep
  • noisy breathing, including snoring when sleeping.

Diagnosis

MSA can be difficult to diagnose, especially early on when symptoms appear very similar to Parkinson’s. This can mean it takes some time for a diagnosis to be reached.

There is no specific test to confirm MSA. However, brain scans and blood tests may help to rule out other possible causes. A neurologist or a movement disorder specialist, will make careful observations over a period of time in order to reach an accurate diagnosis, using a set of criteria, so several visits may be needed in order to give a possible or probable diagnosis.

MSA and Parkinson’s

MSA is often mistaken for Parkinson’s as it initially tends to present similarly. It is important that a doctor experienced in movement disorders is consulted so that she or he can reach an accurate diagnosis. The focus of treatment in MSA is different to Parkinson’s; whilst there is some overlap , it is helpful to get the diagnosis clarified to ensure the best management of symptoms.

Treatment and management

Currently there is no cure for MSA, nor any treatments to delay the degeneration of nerve cells. However, medications and treatments can help to manage some of the symptoms. As the illness progresses, increasing help will be needed with everyday activities. Because MSA is a complex illness, a combination of approaches will probably be suggested.

Medication

A specialist doctor or neurologist may prescribe medicines, often including Parkinson’s medicines, to treat movement symptoms, regulate blood pressure and improve bladder control. She or he will tailor your medication to suit your symptoms and adjust the dose as necessary.

Specialist equipment

In many countries, an occupational therapist or physiotherapist will be able to advise on specialist equipment and strategies to overcome everyday difficulties, for example turning in bed, personal hygiene or eating. Your doctor will be able to refer you to the right healthcare professional, so it is important to tell him or her about symptoms and any difficulties you experience.

Complementary therapies

So far there is no actual evidence that complementary therapies can alleviate the symptoms of MSA, but some people find them helpful, for example in relaxing stiffness and rigidity in muscles and relieving stress.

Who can help?

Healthcare professionals who may be able to help include physiotherapists, speech and language therapists, occupational therapists, specialist nurses, continence advisors, dieticians and social workers. Each specialist will be able to advise on specific difficulties and will work with you to find solutions and strategies to make life easier.

In some countries there are MSA organisations that provide help, advice and support for both people with MSA and their carers. Your doctor or specialist nurse may be able to provide you with contacts, or you can ask at your local library or search using the Internet. 

Content last reviewed: April 20

Vision Problems in Parkinson’s Disease

The Michael J Fox Foundation hosts discussions called “Third Thursday Seminars.” Gratefully the events are archive, because I was at the hospital with John when this one occurred.

The details… Our panelists discuss changes in eyesight associated with Parkinson’s as well as the effects of other symptoms and medications on vision. We also cover how scientists are looking at the eye as a source of tests to diagnose the disease in its earliest stages.

I apologize for the dimness of the slides I copied from their slide presentation… But I wanted to show them because this is only the second reference I’ve found in my year of research that confirms my double vision is symptomatic of the diagnosis.

When I learned I needed prism glasses… I was told I had oblique double vision which had a domino effect of also causing Pisa Syndrome.

MANY VISION CHANGES CAN HAPPEN WITH PARKINSON’S DISEASE
PARKINSON’S CAN IMPACT EYELID MOVEMENT IN DIFFERENT WAYS

 

 

Joy or sorrow … perspectives

This is the statement made…and questions posed which triggered the conversations which follow:

“You may judge yourself and others every day without realizing it. Like many members have found, living with Parkinson’s Disease is an exercise in frustrating moments. You may blame yourself when you look in the mirror, drop something, or falter with a simple task. The problem is when you let these internal judgments shape belief in yourself”

“Do you recall a time when you were particularly critical of yourself? What are you doing to show yourself kindness in those moments?” The following 10 excerpts were in conversation in response. Some made me smile/others made me cry.

“typo (it’s all PD’s fault; it couldn’t be me!) “slap stick comedy” not “slap sick comedy” 🙂

” I record meditations and coach others on critical thinking. It’s important to know that our brains (as PD survivors) believe what we tell it even more than what others say, so being kind to your self is important, if not critical.” 🙂

Laughing helps. If I drop something, or do something foolish, I can laugh at myself and try again or my husband helps me. Sometimes it does look like Keystone Cops or slap sick comedy! My laugh helps us both feel better and I go on from there, changing my method just a little bit so that it works for me ” 🙂

“The topic is very important, I think that the majority of people with PD, has been blamed or judge their self for any reason, I used to blame my self because of a feeling that I have failed to my husband and my children, also I was in my house all the time because I did not want my friends to see me. I did not go to restaurants because sometimes the food falls from the fork. I fight with my mind until I realized that due to my self pity I started to lose friends and my family did not count on me to socialize because I will say NO. …After some time a decision to act as a normal person and I start ignoring PD, I realized the love of my family and friends.”

“I have a somewhat different point of view (I have spent my life in that role!). I deal in expectations and my approach is simple but difficult: Did I do the best I could at that point in time? If the answer was yes, then there was no recrimination or feeling of shame. … If I have a weakness, I move to address it and improve my performance. If I simply lack ability (zero athletic ability, for example) and lack of that ability make it impossible for me to perform, I don’t waste time wishing I had it, I move on to something I CAN do. …. I feel you should always be your own most exacting source of criticism – not to judge yourself, but to maximize the abilities you have. You can always improve your skills, and that’s part of the fun. ….. Many people have deemed me competitive but my competition is with myself for the most part. I like to win but I’m not cast down if I don’t – but you better bring your A game when you come.” 🙂

“Very aware of my Speech difficulties and very frustrated sometimes I talk
fast or voice fades… after a while people don’t want to talk with me. Have had speech difficulties for past 6 months very frustrated… ready to leave society and be a recluse . ” 😦

“Hey, don’t become a recluse! I like myself but if I only had myself I would get pretty bored. My husband tells me I’m talking Japanese or I need to use my big girl voice. Then we laugh and go on with whatever we were doing. I am a Christian so I know that God will be with me no matter what. Just keep your chin up and laugh at things that no other you.” 🙂

” I have PD, Osteoporosis and osteoarthritis. Some days are a struggle I cannot fight. Then I have a day like July 20th. My husband and I have a deal, whoever cooks dinner the other cleans up. It was a good day Friday. We had some fresh green beans and yellow corn. I had some Polynesian pork-loin. My husband helped me prepare the meal and was going to share the cleanup. Our 5 year old grandson was here and asked his Papaw to play a video game with him. I listened to the two of them laughing and playing and a joy came over me and I cleaned the kitchen without a broken dish or any other dropped objects. My husband came into the kitchen to help me and was surprised to see the kitchen clean and me sitting at the kitchen table smiling. I told him that God had given me the grace and joy of his time with our grandson to remind me, that I can still have beautiful moments that PD cannot take away. Always hold on to the joy no matter the size or timing and PD will not win the battle that day. ” 🙂

“My little grandsons, 5 and almost 3, were just here from Colorado to visit with Mom and Dad. I have often ‘kicked” myself for not being able to run and play with them like their other grandparents. They have often resisted being close because I can’t do things they like, and I’m slow. In an attempt to leave them a little part of myself for when they’re old enough, I started writing them little poems which I videotaped with me reading to them, then I would email it to my daughter-in-law. This time when they came, they not only knew me “well”, they kissed me, hugged me, and kept saying “I love you, Bakey”. Now they’re even asking me for certain subjects to write about, usually letters from the alphabet, like “x”; I wrote, I love you x-tra very much because you’re x-tra special…etc. Apparently they get very excited because already they understand. I finally realize, to my pleasure, that I have something x-tra to give which other family can’t. I feel much more at ease with them, and with something I can offer. “

“I know that I am my harshest critic. I probably will always be my harshest critic and, quite frankly, I don’t think that there is much that I can do about it. I’ve tried. Believe me, I’ve tried. I understand mindfulness and taking joy in living in the moment, but the monkeys setting up their circus in my head keep me from wondering about what might have been. Yesterday is almost an illusion put together with smoke and Michael and my dreams are filled with a man that I recognize to be me and then I wake up and a stranger fills my mirror. I still find joyful moments, but the work it takes to just keep even is exhausting. We read the Serenity prayer in church yesterday and I almost cried. “God, Grant me the courage to change the things that I can change, the serenity to accept those things that I cannot change and the wisdom to know the difference.” Today, I couldn’t prepare my own plate for dinner as my hand was shaking and unable to lift a slice of beef and transfer it to my roll. I choked on the sandwich three times, but I eventually was able to finish it. I guess being judgmental doesn’t help me to help myself, but it’s tough.


I wish that I could share an inspiring story tonight. I wish that I could be the positive answer guy who always spins feelings into golden threads of revelation, but tonight, living in this moment, I am tired. I know I shouldn’t post when I’m so tired, but anyone who tells you that you shouldn’t be so hard on yourself needs to know that sometimes…..some days…..some sleepless nights……I secretly remember the days before Parkinson’s came knocking on my door. ” 😦

I shared these comments from members of a tribe/team, for those who are struggling, to see they are not alone.