Every Victory Counts

 You may want to go online to Davis Phinney Foundation for Parkinson’s and request the free manual ‘Every Victory Counts’ It is excellent and will greatly benefit anyone reading it. It is 400 pages long.  from Mr. Phinney’s intro:
“This race, a no-holds-barred winner-take-all type of event, demands everything from me. Let down my guard, and it’ll knock me flat – but by refusing to give in, by exercising daily, by eating well and most especially, by maintaining a positive attitude – I find ways to win.”

I’ve been browsing through posts on MyParkinsonsTeam.. an on line support group and social network. I have cut and pasted a few of the comments regarding attitude and patience that I found insightful.

ATTITUDE

“Good morning. I truly believe the best thing to do with the memory loss problem is to lighten up. All my friends and family know what to expect from my pd, so they are very patient with me. If I forget a word, I just call it “thingamagic” and go on with the conversation. I am bilingual, so if I recall the word in the other language, I’ll use it. Even my grandkids, who love to sit and talk with me, when I forget their names and call them “little girl”, they just say their name and go on like nothing happened. I am not trying to make light of anyone’s condition, but remember, it’s half illness, half attitude. The more you stress, the harder it gets. Have a blessed day. “

………………………….

“I read a lot , and I volunteer doing a computer job in which I have to keep my brain running normal . If you don’t use it you’ll loose it.”

………………………….

“I sometimes loose words but probably as often as any other 63 yr. old. What frustrates me is when I’m told by family and friends “ I just told you about that” or “ You already told me that”. I have a fairly high IQ so the loss of my short term memory really irks me. “

………………………..

“I just say,”uh oh Parkinson moment” and people accept that if you treat it as “Oh Well..”

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‘The only other answer for caregivers whose spouse/patient is experiencing this is patience. There are days that I don’t know how many times in 1 day the thought runs through my brain “It’s the disease not him.” That is what you have to constantly remember.’

………………………

“If you’re the person with the ‘memory fog’ then you don’t know what you’ve forgotten – that’s the scary part. I’m listening to Peter Gabriel ‘Don’t give up’ https://youtu.be/VjEq-r2agqc this gives me encouragement and a clue – learn a new song, learn all the words, sing along – learning something new utilizes the brain’s inherent abilities, and will sustain memory function … learn a new sequence of numbers (someones phone number! “

Author: suerosier

In May of 2018, I was diagnosed with Parkinson's. After researching, I believe the symptoms began to manifest themselves years prior to last year. The purpose for my blog is to share what I have learned (with an index) to save others time as they seek for answers about, symptoms, therapies [and alternative things to try], tools I use, Parkinsonisms, recipes, strategies, clinical studies, words of encouragement or just enjoy the photos or humor.

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