There is a story taken from an episode where Michael J Fox was at a Thanksgiving celebration and an awkward situation arose as his tremors were interfering with his attempt to serve mashed potatoes onto his plate. The hostess finally quips; “Ok, you can have a personal victory later.. right now, we need to eat.”
We need to always find a reason to laugh, rather than have a pity party. We want to view life with optimism. When we fall off the keto wagon and eat a donut… adopt the Dory philosophy, ‘keep on swimming’ or Simply Resume. Besides, optimists are happier & live longer. 🙂
My goal is to provide encouragement, being a spokes person for life..not for the disease. I found some little gems of wisdom (or council):
- If you have Parkinson’s don’t let pride keep you from asking for help. If it takes a half hour to button your shirt… allow your caregiver the opportunity to take a minute.
- If you are the caregiver… Ask before you help.
- As a caregiver, you might ask, “Do you want to talk about this… or just let you know I’m there for you?”
- When you’ve asked, “How you are doing?” and your Parkie friend says, “I’ve had a rough couple of days…” that means ‘I’m ready to talk about it… don’t gloss it over.’
- Own the truth.. depression for Parkinson’s may need medical assist. Find someone you can unload emotions on… other than your spouse. (who doesn’t deserve it)
- What I find encouraging… is when people share their positive experiences.
- People who survive have a purpose.
- (Here are a variety of suggestions) * seek for clarity * define your reality * choose joy * don’t focus on yourself * be loving to others * be a role model * to have the peace … give up the need to understand.
- But you never know when a lay person (or researcher) might come up with a solution.. so don’t roll over and play dead.
- Be a spokes person for life. Press forward & do what you can.
Our Trials Represent An Opportunity That Won’t Last. Whatever we face in life that seems like a problem or a trial actually represents an opportunity. In this life, we have the opportunity to praise God, and to worship him, in the face of adversity. This takes an act of will, a decision, a certain amount of discipline.
- If it continues to progress, as the doctors assure me it will, I will fight the good fight of faith with even more joy in my heart. I will not waste the opportunity to show others how to live, fully alive, no matter what is thrown at us.
- We often reflect… ‘God never said it would be easy… But it will be worth it.’
- It Doesn’t Matter. . My continued illness is not an excuse to abandon my faith, it’s an invitation to embrace it. My light and temporary affliction does not matter. Illness is no excuse to abandon faith, it’s an invitation to embrace it.
- God uses many instruments for healing, and often the instrument is medical science.
- Sometimes we ask God for an oak tree, and he gives us an acorn. We must steward the acorn.
- And sometimes we must simply embrace the mystery and accept that we don’t know everything, but affirm that God is still good.
In the movie “Shawshank Redemption”, Andy Dufresne says to his pal Red as they sit in the prison yard, “It comes down to one simple decision. Either get busy living, or get busy dying.”
Each of us is able, today, to offer God the gift of gratitude. Truly, I refuse to waste my Parkinson’s.
I choose to live.