A recent dialog at “The Invigorated Community” an online group for Parkies or their care givers… the question was posed. “How do you get people to understand the fatigue we experience and why we can’t do everything we used to?”
Mind you, I’m the eternal optomist and believe the therapies I have adopted will give me many years of productive living… but I wanted to share what others have said, to answer the question.
Quote from MJFF “One of Parkinson’s more insidious symptoms is fatigue. This is not your garden variety bone-tired. This is fatigue on a cellular level. Your body is working overtime to accomplish the simplest of tasks: Taking a shower, answering the phone, pouring orange juice. In addition, you may be coping with the combination of possible cognitive problems knows as “Parkinson’s apathy”. These problems include difficulty initiating projects, inability to follow complex instructions, short-term memory loss and difficulty in switching gears midstream.
You can fight Parkinson’s disease apathy by exercising, trying to get regular sleep, taking short naps, and making sure you do not isolate yourself.”
I’d like to share a link from… ButYouDon’tLookSick.com It explains the Spoon Theory… a concept developed by Miserandino and frequently referenced among those with chronic or invisible illness. Many people living with conditions ranging from fibromyalgia to anxiety to depression to parkinsonisms self-identify as “Spoonies” and use the theory to explain their lives to people who may not understand the scope of their illness. (Miserandino’s diagnosis is Lupus)