The Spoon Theory

A recent dialog at “The Invigorated Community” an online group for Parkies or their care givers… the question was posed. “How do you get people to understand the fatigue we experience and why we can’t do everything we used to?”

Mind you, I’m the eternal optomist and believe the therapies I have adopted will give me many years of productive living… but I wanted to share what others have said, to answer the question.

Quote from MJFF “One of Parkinson’s more insidious symptoms is fatigue. This is not your garden variety bone-tired. This is fatigue on a cellular level. Your body is working overtime to accomplish the simplest of tasks: Taking a shower, answering the phone, pouring orange juice. In addition, you may be coping with the combination of possible cognitive problems knows as “Parkinson’s apathy”. These problems include difficulty initiating projects, inability to follow complex instructions, short-term memory loss and difficulty in switching gears midstream.

You can fight Parkinson’s disease apathy by exercising, trying to get regular sleep, taking short naps, and making sure you do not isolate yourself.”

I’d like to share a link from… ButYouDon’tLookSick.com It explains the Spoon Theory… a concept developed by Miserandino and frequently referenced among those with chronic or invisible illness. Many people living with conditions ranging from fibromyalgia to anxiety to depression to parkinsonisms self-identify as “Spoonies” and use the theory to explain their lives to people who may not understand the scope of their illness. (Miserandino’s diagnosis is Lupus)

https://www.youtube.com/watch?v=jn5IBsm49Rk

 

 

Author: suerosier

In May of 2018, I was diagnosed with Parkinson's. After researching, I believe the symptoms began to manifest themselves years prior to last year. The purpose for my blog is to share what I have learned (with an index) to save others time as they seek for answers about, symptoms, therapies [and alternative things to try], tools I use, Parkinsonisms, recipes, strategies, clinical studies, words of encouragement or just enjoy the photos or humor.

2 thoughts on “The Spoon Theory”

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: